is anyone involved in any kind of investigational or trial treatments with immuno therapy drugs and myeloma | MyMyelomaTeam

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "is anyone involved in any kind of investigational or trial treatments with immuno therapy drugs"

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Top 5 searches:
Clinical Trials
A MyMyelomaTeam Member asked a question 💭

I,m very interested in clinical trials as Car-T cell immunotherapy for MM patients and also for Dendritic cell Therapy

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A MyMyelomaTeam Member

I am currently in clinical trial S1803 and just started cycle 4. the study is for Post SCT maintenance therapy using the gold standard Lenalidomide vs Lenalidomide and Daratumumab/rHuPH20. It just… read more

The Brief Concept Of A Cure
A MyMyelomaTeam Member asked a question 💭

So the idea of cure got me thinking after I recently relapsed after a SCT. I have said this before, why call it a SCT when the real action is to use high dose chemo/poison (use that word poison in front of your oncologist and watch their reaction) to eradicate ALL of your bone marrow
Now use stem cells to regrow marrow. How/why does one single cancer cell come back and eventually clone and multiply? I though the Melphalan killed it all. So maybe a few survived and hid from the maintenance… read more

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A MyMyelomaTeam Member

Yup. Myeloma is a tricky disease. Part of the reason I opted for ASCT right now was because of my concern that I would age out. Every major juncture in my treatment has involved an element of… read more

Hi There Can Anyone Explain The CAR T Cells Therapy? I Need To Know………
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Larry I am sending you lots of hugs, stay strong and well.

What Treatment Options Have You Used For Relapsing MM?
A MyMyelomaTeam Member asked a question 💭

Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more

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A MyMyelomaTeam Member

Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more

Clinical Trials For SMM
A MyMyelomaTeam Member asked a question 💭

I saw a trial in Texas that involved Tumeric injections Is anyone familiar with where that is?

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A MyMyelomaTeam Member

I'd be interested in the results.

I've Been Doing Chemo Every Week Since June 2023 Is This Normal?
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

If you get a Complete or Very Good Response, please do not get a SCT. It will damage your immune system, most likely forever. You'll also lose your Life Time of Gained Immunities - Your Immune System.

… read more
I'm Interested To Find Out How Many People On This Forum Have Been Deemed Their Cancer Is In Remission And Are - No Longer Taking MM Meds ?
A MyMyelomaTeam Member asked a question 💭

I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.

I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.

MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...

Thanks,
Larry2

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A MyMyelomaTeam Member

just as I think of stopping maintenance my ANC dropped to 1..1
lucky me

Are Chemo Infusions Every Other Week For High Risk Patients Necessary?
A MyMyelomaTeam Member asked a question 💭

I have had a stem cell transplant and been on maintenance therapy for 2 1/2 years. I have high risk MM with translocation 14;16. I have been MRD negative since the transplant. Will I need to stay on this treatment for as long as it works?

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6 Facts About Myeloma Maintenance Therapy Read Article...
A MyMyelomaTeam Member

Carrie
How are you doing? Are you still on the same treatment? My Mom stopped driving all the way to Seattle and her MM Oncologist worked with the local hospital to give her the infusions. Is that… read more

What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

Ultra High-risk Smoldering Multiple Myeloma Diagnosis.
A MyMyelomaTeam Member asked a question 💭

I just discovered I am ultra high risk smoldering MM due to having chromosome abnormalities 1q21, 1q22, and q32. It makes me less likely to benefit from treatment. Looking for best way to deal with it. ANyone have any experience?

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A MyMyelomaTeam Member

I think they can as long as the trial guidelines are followed