What is CCML
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
Seems like they have told me everything has chance of secondary cancers. Probably true. My primary cancer is primary concern
Multiple myeloma for the last 9 years and have never been as tired as I have been for the last two weeks!
I responded to an previous comment about how sugar brought on fatigue
I hope it turns out okay 🙏🥰
So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
Is this site for all blood cancers, not just Multiple Myeloma? Is there a different section or page for other myelomas, such as Leukemia?I just did a search and saw this site is for myeloma, and only mentioned Multiple Myeloma once, so I'm assuming MM is just one.....
Just multiple myeloma.
Has anyone spoken to their oncologist about how the MM treatments are (hopefully) driving the numbers down to minimal residual disease but doesn’t address the genetic mutation in the bone marrow that’s producing the abnormal cells? Hence, MM comes back over time. We’re so focused on treating the disease with pills and injections, and new drugs for treatment that I never hear what the researchers are focused on to actually cure the disease.
This is the first paper I’ve read which addresses… read more
I think we all (City Governments should start then I think it would spread nationwide) should go back to GLASS containers that could be recycled and used for liquids and containers for food. Go back… read more
I had a routine annual mammogram and was told to schedule a
sonogram for a more thorough check because of a noted potential concern .. I have never had to have a second review (even with dense
breath tissue).. any thoughts or experience along this question.
debra 854 I know 3 men who had MM and it has morphed into other blood cancers. Two of them have passed and they passed quite quickly. The MM turned into MDS and then leukemia. It’s the leukemia that… read more