patience accepting that control requires self care and myeloma | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Emotional Well-Being Living with Myeloma Myeloma Condition Information Myeloma Symptoms Myeloma Treatments All Resources
About MyMyelomaTeam
What is MyMyelomaTeam Terms of use Privacy policy
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "patience accepting that control requires self care" in Q&A. To see all results and access other features, sign up for free.

Posts
Resources
Q&A
People
Patients Multiple Myeloma Handbook
A MyMyelomaTeam Member asked a question đź’­

Attached is a patients handbook that I recently came across for those interested.

https://issuu.com/international-myeloma-foundat...

Patient Handbook
Patient Handbook
https://issuu.com/international-myeloma-foundation/docs/patient-handbook-en
•
View reactions
A MyMyelomaTeam Member

Thank you for sharing this information

After The Transplant, What Is It Like When You Return Home?
A MyMyelomaTeam Member asked a question đź’­
•
Be the first to like/hug
Stem Cell Transplants for Multiple Myeloma: Your Guide Read Article...
A MyMyelomaTeam Member

I have been home 66 days after my transplant. I was in the hospital 19 days and felt so good to get home. I have been able to have family over and the best part is we can sit outside on the patio and… read more

How Do I Pay For Revlamid Once I Retire And Go On Medicare?
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

Thanks for that information đź‘Ť

Has Anyone Participated In This Trial?
A MyMyelomaTeam Member asked a question đź’­

https://medicalxpress.com/news/2022-12-experime...

Seems to be very promising.

Peter

•
View reactions
A MyMyelomaTeam Member

MGlive, how many doses did you take? So it sounds like you are having a pretty durable response.

MinimuMM-seq, Has The Potential To Replace A Bone Marrow Biopsy
A MyMyelomaTeam Member asked a question đź’­

https://www.dana-farber.org/newsroom/news-relea...

New Technique Can Detect and Analyze Tumor Cells of Multiple Myeloma and Precursor Conditions from Blood Sample
New Technique Can Detect and Analyze Tumor Cells of Multiple Myeloma and Precursor Conditions from Blood Sample
https://www.dana-farber.org/newsroom/news-releases/2022/new-technique-can-detect-and-analyze-tumor-cells-of-multiple-myeloma-and-precursor-conditions-from-blood-sample
•
View reactions
A MyMyelomaTeam Member

Great information!

A plant-based diet can turn a lot of our ailments around.

I even stopped eating turkey bacon, deli, and other processed meats once I found out that they are Class-1A… read more

When A Patient Is On "standard Care", What Are The Chances That New Drugs/treatments Are Available? Only Certain Medications Are Allowed.
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
7 Ways To Avoid Stopping Treatment for Multiple Myeloma Read Article...
A MyMyelomaTeam Member

I live in Pennsylvania and they have a program for lower income people.It’s called PACE. I wonder if other States have the same kind of programs ? I pay $8.00 a month for my Revlimid. The most I will… read more

My DX=MM (St 3). The Oncologist. Says "just Die Peacefully. You Have Lived Long Enough For Anyone." (!) . My Age Is 83. Frustrating.
A MyMyelomaTeam Member asked a question đź’­

Very active life. Football (playing coaching, officiating) 50 years. Backpacking. Travel. US, Canada, Mexico 25 great grandchildren. 23 Cardiac stents. Failing Kidneys, Leukemia, Lymphoma, many cancers, 57 cancer-related surgeries and individual treatments. Pastor to 23 different congregations.

•
View reactions
Waldenström’s Macroglobulinemia vs. Multiple Myeloma: 4 Differences Read Article...
A MyMyelomaTeam Member

I do wish they would figure out why our bone marrow make these cells in the first place🤔

Are Any Of You Using A Palliative Care Team To Deal With Your Side Effects. If So How Has That Been Working For You?
A MyMyelomaTeam Member asked a question đź’­

I am recently diagnosed with light chain mm. Have not yet started treatment but trying to get more information about my options.

•
View reactions
A MyMyelomaTeam Member

Is Caregivers an organization or...??? A friend's mother used something local to her, but had things stolen. Several years back, I hired several people (1 at a time) from local churches which was… read more

Has Anyone Opted Out Of A Stem Cell Transplant Due To The Complexity Of The Procedure?
A MyMyelomaTeam Member asked a question đź’­

At the moment I have SMM but I will need treatment soon but I am thinking of opting out of having a stem cell transplant.
It sounds like such a complex and difficult procedure to go through.
Just wondering if anyone else has opted out of it?
I know some people are not suitable for the procedure though.
Have a good day Toni

•
View reactions
A MyMyelomaTeam Member

I opted out...seems to me stem cell trans ruins quality of life for very little gain...on the other end. find the meds that control the MM...and enjoy life!

What Does Remission Mean In Multiple Myeloma?
A MyMyelomaTeam Member asked a question đź’­

I find it interesting that many of you say that you are in "remission." My husband's Hematology Oncologist says that he never tells his patients that they are in "remission" because if one looked hard enough in a MM patient, they could always find some cancer cells hiding somewhere in the body. Has anyone else ever been told this before?

•
View reactions
A MyMyelomaTeam Member

maybe the term should be changed to " Respite"