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How long does it take for MGUS to progress to Multiple Myeloma
After watching some of Dr Brandy’s talks online, I was amazed at how smart he is. He has MM too and is doing quite well.
No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more
Very fatigued and sometimes fatigued and forgetful. Is this normal?
Sorry to say but this website is starting to be like all the other with more Medical Media and pharmaceutical companies. That was one of the reasons I like the group and don’t respond to other groups… read more
I have MGUS currently and interested in supplements to prevent progression
Thank you Tricia. I think that is why people take curcumin supplements (tumeric) because to get the recommended amount of tumeric you would have to eat a ton! thank you for your response!
Generally good. Aches & pains as anyone my age.
Hi Chris,
I depends on what type. Most cases of MGUS do not progress. I have a more high risk type, so I progressed to Smoldering.
Paula🌹
Question I have:
Should I be in this group if I only have SMM. Everyone else in here has MM. Just confused and concerned, but this group is very helpful in gathering information. On what I might be experiencing at a later time........
I started at MGUS 7 years but now at SMM just 3 months blood work
I was just diagnosed last Wednesday, no treatment is needed at this. I'm scheduled for a nerve test on the 28th of this month due to possible neuropathy. I'm not diabetic. Could this disease damage your nerve?
Thanks Paula, I have nutritional yeast, how much should I be using?
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
When one is diagnosed with MM, is MGUS and/or Smoldering MM always a precursor which goes undiagnosed until the full-blown MM diagnosis? Just wondering how long before my husband's MM diagnosis in March 2019 might he have had MGUS and/or Smoldering MM and no one identified it. He is of the opinion that he had it long before, since the pelvic lesions and the spine vertebrae deteriorations had advanced so far.
I was never diagnosed with MGUS. I went right to SMM then active
Or had SMM for some time and haven't progressed.
I'm told I have a 50% chance of progressing in the first 5 years.
And 70% over 10 years. I'm not sure what my odds are of hitting a dear with all the country driving I do. I'm signing up for a clinical trial that tries to prevent progression.
I think that it is great to participate in a clinical study with SMM. The theory is that treatment at this stage may actually curative. In my case, I went from MGUS to SMM to active MM in a 10 month… read more
