A myeloma diagnosis can significantly impact quality of life. One of the key effects of the disease is feeling isolated and alone, according to the results of a recent survey.
To evaluate how a myeloma diagnosis affects daily activities, MyMyelomaTeam recently surveyed 218 members about their experiences living with myeloma. Survey questions investigated myeloma’s impact on day-to-day life, as well as steps members take to manage the challenges that come with the diagnosis. Here are a few of the key takeaways from the survey:
“Quality of life” is a broad term that describes a range of topics. MyMyelomaTeam sought to find out exactly how myeloma affects quality of life.
The majority of members surveyed (72 percent) indicated that myeloma interferes with overall quality of life. This includes the following responses:
Despite the impact of myeloma, MyMyelomaTeam members who took the survey are taking a number of steps to make it easier to live with the condition.
Living with a chronic condition like myeloma can sometimes mean you spend hours researching and still can’t find the information you’re seeking. MyMyelomaTeam offers information about the symptoms of myeloma and treatments for the condition, as well as many other resources about living well with myeloma.
MyMyelomaTeam is the social network for people living with myeloma. On MyMyelomaTeam, more than 13,000 members come together to ask questions, give advice, and share their stories with others who understand life with myeloma.
What tips or questions do you have about living with myeloma? Share your thoughts in the comments below, or start a conversation on MyMyelomaTeam.