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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How long does MGUS last before going to Myeloma. How long have I had MGUS as this is the first time diagnosed after a hospitalization

A MyMyelomaTeam Member asked a question 💭
Sarsota FL

Very fatigued and sometimes fatigued and forgetful. Is this normal?

May 14, 2024
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A MyMyelomaTeam Member

Hi Chris,
Some people never progress from MGUS to Smoldering, to MM. For others it, it take 10,20, 30 years. I was diagnosed with MGUS in 2020. I think I had it since 2011, since my WBC was 2.8. It took me 2 1/2 years to progress to Smoldering, because I have high risk cytogenetics. It’s important to know what translocations, additions, or deletions you have too. Many factors go into your risk equation. The best person to talk to is your doctor. Also, look at your test results. If you don’t have them, ask for them. Then go to theMMRF.org website and look up what they mean.
Paula🌹

May 14, 2024
A MyMyelomaTeam Member

Sorry to say but this website is starting to be like all the other with more Medical Media and pharmaceutical companies. That was one of the reasons I like the group and don’t respond to other groups that are just gathering data for companies

May 15, 2024
MyMyelomaTeam

MGUS (monoclonal gammopathy of undetermined significance) is a lifelong condition that does not always progress to multiple myeloma. The risk of progression varies based on individual risk factors. According to the context provided:

- People with MGUS at the lowest risk for progression have about a 0.5 percent per year Show Full Answer

MGUS (monoclonal gammopathy of undetermined significance) is a lifelong condition that does not always progress to multiple myeloma. The risk of progression varies based on individual risk factors. According to the context provided:

- People with MGUS at the lowest risk for progression have about a 0.5 percent per year chance of their condition becoming more serious.
- Those with higher-risk MGUS may face up to a 3 percent annual risk for progression.

As for how long you've had MGUS, it's difficult to determine the exact duration before diagnosis. MGUS is often asymptomatic and can be undetected until identified through blood tests for unrelated reasons. Since this is your first diagnosis after hospitalization, it's not possible to specify how long you've had MGUS without prior testing data. Regular monitoring, as recommended by your healthcare provider, is crucial to manage the condition and watch for any signs of progression.

May 14, 2024

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Has anyone on here only had MGUS and ended getting a Bone Marrow Transplant?

A MyMyelomaTeam Member asked a question 💭
Los Angeles, CA
April 8