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Been off all meds for 2 months now, feeling great, here are latest Lambda/Kappa numbers.

A MyMyelomaTeam Member asked a question 💭
San Jose, CA
August 14
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Answer Summary

Members discussed the importance of MRD ClonoSEQ testing for tracking Multiple Myeloma stability, with several sharing their personal lab... Read more

Members discussed the importance of MRD ClonoSEQ testing for tracking Multiple Myeloma stability, with several sharing their personal lab results, testing timelines, and experiences advocating for more sensitive monitoring beyond standard blood work. A recurring theme was quality of life over aggressive treatment, with members weighing the risks of staying on lenalidomide, debating the long-term value of stem cell transplants, and hoping for less toxic options in the future. Several members offered practical guidance, including using ClonoSEQ's 'Find a Doctor' tool to locate providers who offer testing, and shared a Patient Power article on MRD testing as a helpful resource.

A MyMyelomaTeam Member

The ratio is always the important number. The kappa and lambda can both go high in response to infection or inflammation in the body so that is not a worry if they do but the ratio is the important factor. It is when one goes high and the other stays normal that is alarming.

August 15
A MyMyelomaTeam Member

@A MyMyelomaTeam Member Rick these are my latest numbers. Doc says not ready for a lenalidomide break. Also these numbers were taken while I was not doing the full 21 day sequence for July.
After seeing your test results, I really need to have an MRD negativity clonoSEQ test.

August 15
A MyMyelomaTeam Member

Quality of Life creates Longevity

August 20
A MyMyelomaTeam Member

@A MyMyelomaTeam Member also the BMB ClonoSEQ is considered more accurate than the blood test. Based on an AI search. But the blood test is still considered good for routine monitoring, however it could miss some cells.

August 17

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