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August 26
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Answer Summary

Members rallied around a question about whether a rising FLC ratio of 332 and neck pain could signal multiple myeloma progression, with many... Read more

Members rallied around a question about whether a rising FLC ratio of 332 and neck pain could signal multiple myeloma progression, with many emphasizing that a single lab result alone is not enough to draw conclusions. Several members stressed the importance of tracking both Kappa and Lambda values over time, getting kidney function checked, and reporting neck pain to a doctor right away. A recurring theme was the critical importance of seeing a myeloma specialist, with members pointing to the MMRF as a resource for finding one and sharing personal stories of better outcomes after connecting with specialized care.

A MyMyelomaTeam Member

Joe,
As you can see, many people are concerned for you. The most important person on your team is a MM Specialist. My first 2 Oncologists were not and I had no idea I needed a MM Specialist. The Multiple Myeloma Research Foundation has a list of MM Specialiss around the country. HTTPS://www.themmrf.org
Your Hematologist/Oncologist will be happy to work with them on your treatment plan, reading your test results and deciding which scans you need.
Paula🌹

The MMRF | Multiple Myeloma Research Foundation
The MMRF | Multiple Myeloma Research Foundation
August 29
A MyMyelomaTeam Member

I am also being treated at a teaching hospital, the University of Alabama at Birmingham.

August 30
A MyMyelomaTeam Member

So true, Louise. I was fortunate to have been referred to an MM specialist by my oncologist. Although initially referred for a stem cell transplant, I was chosen for clinical trial and am very grateful for that. All the best.

August 30
A MyMyelomaTeam Member

Good input and advice, Paula. 😊

August 29
A MyMyelomaTeam Member

They can't tell from one set of labs. They will need to run a few consecutive myeloma panels, imaging and a bone marrow biopsy if you haven't had one. Let you doctor know about your neck pain as soon as possible.

August 27 (edited)

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