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When doing bloodwork post car t does your light chain values have to remain below the normal range for the car t to be working.

A MyMyelomaTeam Member asked a question 💭
Baltimore, MD
September 14
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Answer Summary

Members discussed what light chain values mean after CAR-T therapy for multiple myeloma, with several sharing their own numbers and what... Read more

Members discussed what light chain values mean after CAR-T therapy for multiple myeloma, with several sharing their own numbers and what changes prompted concern from their care teams. A recurring theme was the importance of watching for movement in only one light chain, staying in close contact with specialists, and asking detailed questions before joining clinical trials, including pushing back on procedures like bone marrow biopsies done without sedation. The community also offered strong emotional support, celebrating remissions, encouraging those facing new treatment decisions, and lifting each other up through the ongoing challenges of relapse and recovery.

A MyMyelomaTeam Member

Yes I was told I’m in complete stringent remission. I’m just thinking ahead to when I have my mm bloodwork in September what to think if the light chains went up from .6

September 14
A MyMyelomaTeam Member

Jan, that's great news!! Being off treatments and still doing well. I'm hoping to get there. 🥰

September 23
A MyMyelomaTeam Member

Tecvali is a approved drug
I took it for a year. I have been off it for 1 and a half years already. It is great. I have been in remission for a couple of years
The date today is (Phone number can only be seen by the question and answer creators)

September 22
A MyMyelomaTeam Member

Oh Sharon. I'm sorry you are having to deal with this at all. I am an advocate for clinical trials. I don't understand why you can't have the option of sedation for the bone marrow biopsies. I've had them both ways. A little sedation is a good thing.

September 18
A MyMyelomaTeam Member

I don't know, but AI says it's a good thing. Showing a good response. Please let us know what your specialist says🥰

September 14

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