Connect with others who understand.

sign up log in
About MyMyelomaTeam

Beginner's Mind - Not Knowing It All When Living With Myeloma

Posted on April 09, 2019



"The complexities of this disease make me want to read everyone's comments as I learn more and more. The truth is I know enough not to realize how very little I know."
- Member of MyMyelomaTeam

Living with cancer can be difficult and even a burden, but also an opportunity to rid yourself of what you think you know. Have you heard the saying, "People don't get it until they get it"?
That is so true about myeloma.

"The more I learn about myeloma, the more I realize that it's not my fault."

-Member of MyMyelomaTeam

A myeloma diagnosis forces us to drop our negative assumptions about life with cancer. Members on MyMyelomaTeam gain perspective from other members' experiences to become better informed about what it's really like to live with myeloma.


Here are recent conversations from members of MyMyelomaTeam:


"I'm glad I found this site. I get lots of support from my family and friends, but it's great to have a place where I can talk to people who are going through the same thing as me."

"Two small but powerful things happened today. First, I was able to go for a walk outside. Second, I actually bought shampoo for the first time since August! Prior to my transplant I had long, thick hair and went through a lot of shampoo."

"My son and his wife and child came from Oregon and cooked dinner for me. It is things like that that make me happy and I am so grateful for all the love in my life."

What negative assumptions have you let go of about myeloma? Tell us about it in the comments below or directly on MyMyelomaTeam.com.

Recent articles

Scientists don’t yet understand the exact causes of multiple myeloma. However, they have...

Exposure to Radiation and the Risk for Myeloma

Scientists don’t yet understand the exact causes of multiple myeloma. However, they have...
People with multiple myeloma may face myriad challenges, including health care disparities and...

How Would You Use $100,000 To Improve Myeloma Care?

People with multiple myeloma may face myriad challenges, including health care disparities and...
Multiple myeloma is a type of cancer that affects white blood cells, specifically plasma cells....

Rashes and Skin Changes With Myeloma

Multiple myeloma is a type of cancer that affects white blood cells, specifically plasma cells....
Solitary plasmacytoma and multiple myeloma are types of cancer that form from plasma cells....

Solitary Plasmacytoma vs. Myeloma: How Are They Different?

Solitary plasmacytoma and multiple myeloma are types of cancer that form from plasma cells....
For many people diagnosed with multiple myeloma, weight loss was one of the first signs that...

Weight Changes and Myeloma

For many people diagnosed with multiple myeloma, weight loss was one of the first signs that...
Shortness of breath, also called dyspnea, is a common symptom of multiple myeloma, a type of...

Breathing Problems and Multiple Myeloma

Shortness of breath, also called dyspnea, is a common symptom of multiple myeloma, a type of...
People living with multiple myeloma often experience dizziness. For some MyMyelomaTeam members,...

Dizziness and Multiple Myeloma

People living with multiple myeloma often experience dizziness. For some MyMyelomaTeam members,...
Several different risk factors can increase your chance of developing multiple myeloma. One known...

Which Workplace Chemicals Raise the Risk for Myeloma?

Several different risk factors can increase your chance of developing multiple myeloma. One known...
A myeloma diagnosis is a life-changing event that can alter the way you think about your future....

Medical Power of Attorney and Myeloma

A myeloma diagnosis is a life-changing event that can alter the way you think about your future....
Like all cancers, multiple myeloma is caused by genetic mutations that allow cells to divide and...

What Causes Multiple Myeloma?

Like all cancers, multiple myeloma is caused by genetic mutations that allow cells to divide and...
MyMyelomaTeam My myeloma Team

Thank you for signing up.

close