I have been sleeping in our recliner since Sept 1 2024 and will most likely be having a transplant in April and am concerned about being an outpatient and trying to sleep in a hotel bed.
Honestly, I was just totally over it when I got to transplant. They gave me high dose Cytoxan before collection. I wish I had know to refuse to take that. Beware of a drug with toxic in the spelling. It gave me sepsis and a two weeks hospital stay in September before my transplant. I don't remember that whole month. Anyway, I was finally able to collect stem cells in October. I had my transplant over Christmas 2017. I did get c diff and sepsis again, but it wasn't as bad as when I had sepsis the first time. I got a very good partial response to transplant. Which was a 90% reduction in my myeloma . Considering I didn't think it would work at all and the fact I'm still on the same drugs over 7 years later, I guess it was the right choice for me. The transplant wasn't as bad as my bout with sepsis. Mainly, I was wishing I had invested in some good headphones. Hospitals are very noisy.
Hi Michael - I am looking for more insight myself to the whole transplant part. You seem to be a little ahead of me schedule wise so you might be able to provide the most information moving forward. I live in California and will be having my SCT at Stanford. They certainly have it down to a fine science. It is my understanding that once I finish cycle 4 of induction I will get a two week break then they will start the steps of the transplant. They will do blood work and scans to re-stage what my starting point will be. Then is the mobilization phase, apheresis, chemo and then the SCT. That is my understanding of what comes next. What have you been told so far as how things will go? I would love to hear your story. Take care.
I hated being inpatient, but outpatient isn't a cake walk either. In some ways it seems harder on caregivers. I hope you can get a comfortable recliner.
Could you ask the hotel manager about putting a recliner in your room? My Lazy Boy actually comes apart.
Many people with myeloma face challenges sleeping due to back pain, especially during or after stem cell transplants. Some have found relief by continuing to sleep in a recliner, as it provides better support and comfort. If you're concerned about hotel beds, consider bringing supportive pillows or a portable recliner Show Full Answer