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Ok, Is 1.80 Good For Lamda Free Light Chains ? In November It Was 17.7 Up From 11 In October
A MyMyelomaTeam Member asked a question 💭

And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests

A MyMyelomaTeam Member

Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question 💭

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

Do You Take Resveratrol?
A MyMyelomaTeam Member asked a question 💭

https://x.com/makismd/status/178346769961337694...

https://x.com/makismd/status/1783467699613376945?s=46&t=SeVI8cfttZjyxQQM4ojvsg
A MyMyelomaTeam Member

Oh I forgot one supplement: Immunocal, a glutathione precursor. I take 2 packets a day in pomegranate juice. Ok I think that’s it. 😅

I Need Ur Help
A MyMyelomaTeam Member asked a question 💭

i just received my ct scan for mouth and jaw ,my oncologist nurse call me after that and told me we need to do biopsy from ur mouth , doctor Cowen suspect it's the myeloma that do that in ur mouse, even my cbc came today very good , m spike 0.1, she told me he is not sure, , any help with reading my ct scan,, and if its myeloma in my mouth my question:is at can be treated?and if somebody experience like my situation I would appreciate if he can tell me his story thanks

A MyMyelomaTeam Member

Karen my MM was aggressive so that is why SCT was suggested and I went for it.

Treatment Vs. Non-treatment. What Are The Tradeoffs?
A MyMyelomaTeam Member asked a question 💭

I've currently been diagnosed with a single plasmacytoma in right tibia, which we'll treat soon. It appears that I may be on the line between starting treatment for multiple myeloma (some indicators are okay, and a few aren't). We're inclined to monitor things carefully and not start treatment for a while, if that is possible
However, the more that I read about the treatment process and side effects, the more I wonder if it is worth it. I'm 73 yrs old, have Stage 3-4 (my GFR fluctuates)… read more

A MyMyelomaTeam Member

Thank you.

Do You Need A Prayer When Suffering?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Amen to that. God is good all the time. Prayers go up and blessings come down..🙏💕

Supplements Take
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Check out Dr Brandy’s book “Beat Back Cancer Naturally” for a list of supplements. He is being treated for MM but believes a plant based diet and supplements help keep his high risk MM in check… read more

Is Anyone Using The HevyLite Blood Sample Test ? Is Anyone Getting Mass Spectrometry Blood Testing ?
A MyMyelomaTeam Member asked a question 💭

This is a better defined test of the Kappa and Lamda heavy and light chains

This test is available for all Ig types. It more accurate than SPEP and IFE

If so, where are you getting it from and is it covered by insurance

I’ll be looking into that and add to this Post

Mass Spectrometry Testing (MST) is a far more accurate way to test for MM activity but I think it’s only available at limited facilities

If you’re getting MST, where ?

A MyMyelomaTeam Member

Thank you @A MyMyelomaTeam Member I'll definitely do that!

At What Point Does Your Doctor Recommend Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
Managing Peripheral Neuropathy in Myeloma Read Article...
A MyMyelomaTeam Member

Read Dana Farber's Dec 23' Determination Trial Updated Press Release -
They now admit (it's always been in the Report) that if you get a Complete Response or even a Very Good Response - Do Not Get a… read more

My Husband "s Myeloma Is Smothering Right Now But He Is Anemic. Could He Take Iron Supplements?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

How early are you with your treatments. I have labs with every treatment. Was weekly early on, now every 4th Wednesday. But always labs first. My oncologist checks labs before treatment is… read more