creating a positive outlook while living with myeloma and myeloma | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "creating a positive outlook while living with myeloma" in Q&A. To see all results and access other features, sign up for free.

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question đź’­

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

•
View reactions
A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

Looking To Connect With Other Teclistamab Patients
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

To connect with other patients who are using Teclistamab (Tecvayli) for myeloma, you can sign up at MyMyelomaTeam. This platform is specifically designed for individuals living with myeloma, allowing… read more

Does Anyone Have An Autoimmune Disorder As Well As MM?
A MyMyelomaTeam Member asked a question đź’­

I am now in Active MM and it is escalating at an alarming rate. My light chain ratio went from 80% to 182% in 4 weeks. All the other numbers are also going crazy. I start chemo Tuesday. I will be on the following:
Daratumad, Velcade, and Cyclophosphamide. Any advice would be greatly appreciated.

•
View reactions
A MyMyelomaTeam Member

Laurie,
People confuse “Never, ever give up, with Never lose faith.” I like to think that as each day starts, I’m one step closer to Paradise, so I better start tidying up.

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

What is CCML

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

Has Anyone Been Diagnosed With Another Cancer While Having MM?
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more

Treatment Vs. Non-treatment. What Are The Tradeoffs?
A MyMyelomaTeam Member asked a question đź’­

I've currently been diagnosed with a single plasmacytoma in right tibia, which we'll treat soon. It appears that I may be on the line between starting treatment for multiple myeloma (some indicators are okay, and a few aren't). We're inclined to monitor things carefully and not start treatment for a while, if that is possible
However, the more that I read about the treatment process and side effects, the more I wonder if it is worth it. I'm 73 yrs old, have Stage 3-4 (my GFR fluctuates)… read more

•
View reactions
A MyMyelomaTeam Member

Thank you.

Has Anyone Found Anything That Helps With Lack Of Energy?
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

I'm trying to follow Dr Brandy's advice from his book "Beat Back Cancer Naturally". The supplements and change of diet are giving me more energy. I vacuumed the whole house today, walked both dogs… read more

What Does It Mean When Your Labs Results Come Back Saying Your Kappa Lambda Light Chain Is High
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

Thank you for that very informative explanation @A MyMyelomaTeam Member !

Has Anyone Gone From Stable To Unstable With MM And Was The Experience Horrible? I've Been Told It Will Happen And When It Does Its Worse
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

Hi Karen.. Yes, two or three times. Lucky for all of us, new drug discoveries and advancements in all areas of treatment have resulted in stunningly positive results. I am not spiritual, though I do… read more