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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 28, 2025
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A MyMyelomaTeam Member

Carpal Tunnel Syndrome? When your hands are feeling numb. raise them up in the air on either side of your body, as much as you are able for a few minutes each and see if that helps. If it does it is something you can take to your doctor.

November 2, 2025
A MyMyelomaTeam Member

I complained to my doctors for over a year that my hands were going numb when I was sleeping on my back with my hands above my head. Don’t know if it had to do with MM? I have heart issues too so who knows.
Good Luck, My best to all!!

October 29, 2025
A MyMyelomaTeam Member

I started having my legs go numb while standing for a while when I was a bodyguard, then me, my Dad, my Nephew, and a friend went to the deer lease in West Texas and a very cold front blew through one day. That evening after I dropped everyone else off at their stands and had parked a pretty good ways away from my stand and started walking to my stand I just fell over 3 times while walking without any warning. This was right between Thanksgiving and Christmas. When I went to met my family at a family members house for Christmas dinner I was using a walker. My Dr thought it was a bulged or ruptured disc but wasn't sure why cold weather made it worse, so when the did an MRI thats when the discovered a large tumor on my spine that had my spinal cord shoved to on side inside one of the two vertebrae that were completely covered inside and out by the tumor and was fixing to break my spinal cord. The pressure on the cord was causing the numbness. Luckily they did 12 days straight of an strong radiation that shrunk it to take the pressure off my spinal cord. So technically the numbness was before I was diagnosed and was the reason I was diagnosed too.

October 28, 2025
A MyMyelomaTeam Member

My husband has been in the past few years

October 28, 2025
MyMyelomaTeam

Did you experience paresthesias (numbness or tingling) in an extremity before your myeloma diagnosis?

Yes, this is actually quite common. Many MyMyelomaTeam members have shared similar experiences. Peripheral neuropathy symptoms like numbness and tingling can appear before a myeloma diagnosis.

In fact, a MyMyelomaTeam member Show Full Answer

Did you experience paresthesias (numbness or tingling) in an extremity before your myeloma diagnosis?

Yes, this is actually quite common. Many MyMyelomaTeam members have shared similar experiences. Peripheral neuropathy symptoms like numbness and tingling can appear before a myeloma diagnosis.

In fact, a MyMyelomaTeam member wrote: "My first symptom of MGUS was numbness in my toes. My neuropathy spread from my feet to the top of my hips."

These sensations often start as a "pins and needles" feeling in the hands or feet and can be an early indication that something needs medical attention. The abnormal antibodies produced in myeloma can damage nerves, leading to these symptoms.

If you're experiencing these symptoms, it's important to discuss them with your doctor. They can help determine the cause and work with you on managing any discomfort. Many people find relief through various treatments and adjustments once the underlying cause is identified.

You're definitely not alone in this experience!

October 28, 2025

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