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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Valcade Injection

A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

Myeloma fighters
Any member who has the side effect after the Valcade injection, on the face cheek and jaw feeling the tingling plus something crawling like ants moving around for few days makes it uncomfortable around the face 🤭😩

January 5
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Reactions
A MyMyelomaTeam Member

I have that crawling sensation on my left outer thigh. It's neuropathy, I guess. It can be frustrating feeling like something is crawling on you. I put Icy Hot on the spot and that helps.

January 13
A MyMyelomaTeam Member

Mohd, the symptoms you describe could be low calcium from Zometa. Sometimes it works too well. Let you doctor know

January 8
A MyMyelomaTeam Member

I have been on only Darzalex since 2021. Recently, my specialist added Velcade. I hate the way I feel. Restless, crawly sensations, terrible neuropathy in my hands and feet, and general malaise. Then he left to go to Florida. I have never been fond of my local oncologist, so I found a new one. He's not really near here, but I really like him. I'm hoping he discontinues the Velcade.

January 19
A MyMyelomaTeam Member

I got Neuropathy from taking Valcade. I quit taking the shot

January 10
A MyMyelomaTeam Member

Yes that what I going to ask him about, He is on vacation and I will seeing him next month February 4 .
Donna l had told him that l don’t have back pain or any other pain and serious side effects . My appetite has improved
Feeling better like 70 percent recharge 😃 . It’s only my both feet feeling cold.
Hopefully my dosage will be adjusted .
Thanks again for reminding me
I like it, that’s the reason I joined this MM team 🙏🙂

January 8

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want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what
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