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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

CAR - T Therapy And ANOTHER CANCER

A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

I wanted to share on something my hematology doctor told me and my family about diagnosis discussion.I have high-risk Multiple Myeloma (diagnosed April 2023, ASCT November 2023, currently no M-protein detected and stable on maintenance). My doctor told us very clearly that based on medical scientific research, my specific type of high-risk cancer has a reality: if there is no relapse, it can actually cause another primary cancer after passing the 3-year mark.He also told us, "I am not God to… read more

August 23
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Answer Summary

Members rallied around a post about living with both high-risk Multiple Myeloma and a newly diagnosed lung cancer, offering deep emotional... Read more

Members rallied around a post about living with both high-risk Multiple Myeloma and a newly diagnosed lung cancer, offering deep emotional support rooted in shared faith, resilience, and community. Several members shared their own experiences with secondary cancers and long survival beyond initial prognoses, encouraging a one-day-at-a-time mindset and the importance of not facing cancer alone. A recurring theme was leaning on spiritual strength, staying proactive with appointments, seeking transport and financial assistance programs, and finding peace in community connection.

A MyMyelomaTeam Member

NickDiPaolo
Peace upon you

What a wonderful (Doa ) asking for healing your mind is so good for helping members with your own healing words

Help me not allow my days' distractions and struggles to weigh me down to the point of exhaustion.
That makes me feel very much more comfortable and confident

“ Our Lord God in heaven, hallowed be Your name. Your command is in heaven and on earth. As Your mercy is in heaven, so let Your mercy be on earth. Forgive us our sins and our transgressions. You are the Lord of the good, so send down healing from Your healing and mercy from Your mercy upon this pain.”

For indeed, with hardship comes ease

Thank you

September 1
A MyMyelomaTeam Member

I hope you are able to eat and keep your strength up to tolerate your treatments. 💜

August 24
A MyMyelomaTeam Member

I was told 3-5 years 12 years ago. You sound like your numbers are in a good place now so enjoy it. Secondary cancers are common due to the meds of SCT. Get your check ups and pray for the best. No one knows for sure how long we have.

August 24
MyMyelomaTeam

Thank you for sharing something so personal and significant. What a MyMyelomaTeam member has described — navigating a second primary cancer after high-risk myeloma — takes enormous courage, and it means a lot that this experience is being shared.

Your doctor's candor reflects what medical research does show: people treated Show Full Answer

Thank you for sharing something so personal and significant. What a MyMyelomaTeam member has described — navigating a second primary cancer after high-risk myeloma — takes enormous courage, and it means a lot that this experience is being shared.

Your doctor's candor reflects what medical research does show: people treated for multiple myeloma can have an increased risk of developing a second primary cancer, sometimes years after treatment. Several factors connected to myeloma and its treatments are linked to this risk, including:

- Melphalan (often used in stem cell transplant prep) has been associated with an increased risk of secondary blood cancers
- Lenalidomide (a common maintenance therapy) carries a small but real risk of secondary cancers
- Biological factors — including certain antibody levels and genetic changes in myeloma cells — may also play a role

The overall risk remains relatively low, but it is real, and your doctor was right to be transparent about it. Regarding CAR-T therapy — since you're currently stable on maintenance, it's worth knowing that CAR-T remains an option that has shown strong results even after other treatments. It's a conversation worth keeping open with your hematologist as your situation evolves.

For now, staying closely monitored by your care team across both conditions is the most important step. Wishing strength and stability ahead — you're clearly facing this with remarkable clarity.

August 23
A MyMyelomaTeam Member

Prayers for big improvements 🙏💜

August 30

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