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Patients Multiple Myeloma Handbook
A MyMyelomaTeam Member asked a question 💭

Attached is a patients handbook that I recently came across for those interested.

https://issuu.com/international-myeloma-foundat...

Patient Handbook
Patient Handbook
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A MyMyelomaTeam Member

Thank you for sharing this information

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question 💭

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

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A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

Curious About This Support Site
A MyMyelomaTeam Member asked a question 💭

Is this site for all blood cancers, not just Multiple Myeloma? Is there a different section or page for other myelomas, such as Leukemia?I just did a search and saw this site is for myeloma, and only mentioned Multiple Myeloma once, so I'm assuming MM is just one.....

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A MyMyelomaTeam Member

Just multiple myeloma.

Car T
A MyMyelomaTeam Member asked a question 💭

Good morning! Has anyone had the Car t Therapy????
It appears that my hubby is coming out of remission. f*&^&!!!!
We are looking into Car T since he has had tandem SCT's and his options are either ; Car T, or trying meds to see if numbers get better. I have asked the Doc to do bone marrow biopsy to confirm but his urine is loaded He is light chain MM.

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A MyMyelomaTeam Member

Nice! Hugs

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

What is CCML

They Say I Have Smoldering Multiple Myeloma,I Have It Since 2016, What Next?? The Pain Is So Bad Now, I Had Cancer A Few Years Back,
A MyMyelomaTeam Member asked a question 💭

So confused, it took drs. 6 years to find anal cancer at a stage 4, how is this smoldering?

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A MyMyelomaTeam Member

The 2 cancers are unrelated

M Spike
A MyMyelomaTeam Member asked a question 💭

If information says there is an M spike in blood. What does that mean in terms of melanoma

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A MyMyelomaTeam Member

Thank you. I am seeing my primary on the 15th and we have not discussed yet.This all occurred after a fall where I fractured my right hip & was hospitalized. I was anemic in hospital for a while but… read more

Help Woth Elevated Kappa Light Chains.
A MyMyelomaTeam Member asked a question 💭

I am three years in remission and I just got blood work done but my Kappa light chains were elevated but my Lambda light chains were normal. Can anybody advise me on why this could happen. They are normally both in range but my Kappa is really elevated. I am trying to have faith but my protein electrophoresis is not back yet which shows whether there is any monoclonal proteins in my blood or not.. asking for advice and prayers. I have already had one stem cell transplant and chemo to put my MM… read more

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A MyMyelomaTeam Member

My doctor also recommended watching my paraprotein counts.

UTI And Multiple Myeloma
A MyMyelomaTeam Member asked a question 💭

What if I get an UTI with Myeloma?

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A MyMyelomaTeam Member

They will do a urine culture and treat it with the appropriate antibiotics. 😉

Has Anyone Been Diagnosed With Another Cancer While Having MM?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more