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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Feeling Bad And Trying To Live One Day At A Time?

A MyMyelomaTeam Member asked a question 💭

Lift one at a time, be careful of ..
your selve felling good

A MyMyelomaTeam Member

@A MyMyelomaTeam Member
Why isn’t your pain addressed? Do you have a pain management specialist? My Orthopedic Oncologist is referring me to one, even though my pain now is minimal, but he knows it… read more

Has Anyone Had Pain Worsen During Chemo?

A MyMyelomaTeam Member asked a question 💭

I did not have pain prior to chemo. I am now having pain in my sides and back. It seems more muscular than bone. Like when I twist, turn, or bend. It also feels like my muscles in shoulders are frogging up. I’m staying hydrated. Anyone?

A MyMyelomaTeam Member

The meds are poison. They do result in all sorts of pain and problems. If you’re taking Xgeva or Zometa expect bone pain. If you take Velcade expect neuropathy, muscle damage and weakness and the same… read more

Curcumin (Swanson Theracurmin)

A MyMyelomaTeam Member asked a question 💭

Any thoughts on taking curcumin (Swanson Theracurmin). I just started taking it 100mg once a day. I am definitely feeling the anti-inflammatory effect, joint and back pain relief.

A MyMyelomaTeam Member

@A MyMyelomaTeam Member
With MM eating away at the calcium in our bones, we can’t forget it’s taking it out of our muscles too. If I’m getting enough calcium, I don’t have the cramping, ever. If I… read more

My Cancer Is In Remission And I Have A Very Bad Case Of Neuropathy. Can I Experience Pain From Multiple Myeloma When I’m In Remission?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Sometimes I take the T3 as well when I have pain in my back and hips especially if I walk too much or overdo things.

Good Morning, Has Anyone Used Creatine? Not Only For Muscle Lose But It Can Boost Cognitive? Have Great Weekend

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

wow! I have some research to do! Thanks for the information Larry!

What Do Folks Think About Having A Patient Advocate For Visits, Procedures? Especially When One Is First Diagnosed.

A MyMyelomaTeam Member asked a question 💭

After my Oncologist visit and all the changes we made about issues I have pointed out for years, I got to thinking having a patient advocate, one who has MM for visits would be a good thing. Docs, NP's, assistants tend to be focused on the medical side. Explaining other issues: side effects, experience with procedures, alternatives, etc is not their bailiwick.

A MyMyelomaTeam Member

You never walk alone NEVER GlVE 🔝

My Husband Starts Darzalex IV Treatment Tomorrow. Any Suggestions On What To Do Or Not Do For Him During IV Treatment (8hrs)?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I get diarrhea with Darzalex Fastpro injections. Usually the third and fourth day after treatment.

How Does Caffeine Affect You?

A MyMyelomaTeam Member asked a question 💭

How does caffeine affect you? Since I’ve been home from the hospital, I’ve started drinking regular coffee. Lately, I’ve noticed my heart rate is regularly between 100-120 with a resting heart rate of 85-95. I’m wondering if I need to switch to decaf.

A MyMyelomaTeam Member

I cant tolerate regular coffee since SCT. I found a super clean tested decaf that tastes great made by Purity Coffee. I order it online. They are willing to provide lab proof their coffees are free… read more

Has Anyone Had Kyphoplasty?

A MyMyelomaTeam Member asked a question 💭

Has anyone had kyphoplasty? Do you feel better and was it worth doing?

A MyMyelomaTeam Member

I appreciate you sharing your story. Sounds like you are doing well and that you have recovered from this disease. I think there are many variations of MM. I reacted very quickly to induction therapy… read more

Velcade, Dex & Liver Damage

A MyMyelomaTeam Member asked a question 💭

My husband is on Velcade and Dexamethasone and up until now has had very few difficulties. However, in recent CMP and Gamma GT tests, the AST and ALT have been high, as was the Gamma GT number. He's being referred to a Hepatologist, but I am wondering if his MM protocol could be causing this. Been a year and a half on this protocol without any problem. Anyone else had any liver problems?

A MyMyelomaTeam Member

What is the mg of one tablet of Tramadol you take?