How does caffeine affect you? Since I’ve been home from the hospital, I’ve started drinking regular coffee. Lately, I’ve noticed my heart rate is regularly between 100-120 with a resting heart rate of 85-95. I’m wondering if I need to switch to decaf.

I have smoldering MM but don’t see a lot of others here that might be experiencing it??

My husband is on Velcade and Dexamethasone and up until now has had very few difficulties. However, in recent CMP and Gamma GT tests, the AST and ALT have been high, as was the Gamma GT number. He's being referred to a Hepatologist, but I am wondering if his MM protocol could be causing this. Been a year and a half on this protocol without any problem. Anyone else had any liver problems?

How much Lyrica are people using per day to help with Neuropathy?

What side effects?

What other Meds are you taking with Lyrica to also reduce Neuropathy?

Are you experiencing swelling of your hands and fingers due to Lyrica - if so how do you deal with it?

For a few months, I’ve been on 75mg of Lyrica, twice daily. I’ve been okay’d by my GP to increase my Dose to 4 times daily but reading about Lyrica’s side effects, swelling of the hands and feet is a listed issue.

For at least two months… read more

Is anyone using the Joe Tippens Protocol…

Is so, what was your condition when you started it (such as Stage, percentage bad plasma, original diagnosis or after one or more relapses, etc)?

Did it work?

Why that path (such as others failed)?

What specifically are you taking - items, doses, frequency, etc.?

Problems or side effects?

Simply doing research in the event of a future relapse (MRD- at this time).

Thanks

has now jumped to 800...doc changing meds...from Kyprolis, Revlimid and Velcade..to Daratumumab(Darzalex)....we are hoping this knocks the nbrs back down a bit....hoping for a transplant but not sure what the magic Kappa light chain nbr is going to have to get to..Doc is hoping to get it to 100....but.....

Has anyone successfully received an alternative work schedule ADA accommodation for Smoldering Myeloma? I am repeatedly failing in my requests to alter my work schedule in order to allow me time to seek treatments that may slow the advancement of my SMM. I prefer not to sit by idly while waiting for the disease to advance. I would like some time to actively pursue potential life extending events, training, retreats, on my own reading, prayer and establish myself as a patient with the best Cancer… read more