I actually turned it down even though I was stage 3 because I had no one to take care of me and had to continue working at age 67. Fortunately, all worked out ok and am now turning 70 this month in remission and off all medications.
October 16
I had my first T Stem cell transplant in September 2021 age 61, did not work, 2nd transplant in 2022.
Saved my life, however it is a very terrific thing to go through. Still I would recommend it.
October 16 (edited)
Great question! Many people with myeloma have been through a stem cell transplant (SCT) and have shared their experiences. One MyMyelomaTeam member shared their story of having an SCT 18 years ago, noting how much the process has changed over time.
They mentioned a few things worth knowing:
- Nausea and diarrhea were common Show Full Answer
Great question! Many people with myeloma have been through a stem cell transplant (SCT) and have shared their experiences. One MyMyelomaTeam member shared their story of having an SCT 18 years ago, noting how much the process has changed over time.
They mentioned a few things worth knowing:
- Nausea and diarrhea were common during recovery
- They were kept in isolation until blood counts recovered
- A special antibacterial diet was required (no fresh fruits/vegetables unless hard-skinned)
- Sleep was a big part of recovery
- Bringing entertainment like music, movies, and books helped pass the time
They also offered this honest advice: "It is not the time to be a hero — ask for anti-nausea and anti-diarrhea medication." In general, between 30% and 40% of people with myeloma undergo stem cell transplants. Recovery typically involves a 2–3 week hospital stay, and the first 100 days are considered the most vulnerable period.
The good news is that modern treatments have improved outcomes significantly, with many people staying in remission for around 5+ years after an early transplant. Talking to your care team about whether an SCT is right for you is always the best first step. 💪
October 13
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