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Measles

A MyMyelomaTeam Member asked a question 💭
Finger Lakes NY

AST this past April- day 100 was mid July. Just started re immunization this week, next round of shots will be Jan/April '27. Thinking of going back to work (customers) besides masking and good hand washing how do we protect ourselves. 😷 I realize not going back to work is best but Cobra is pricey per month- have paid almost $10K in health insurance out of pocket last twelve months.

October 8
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Reactions
A MyMyelomaTeam Member

First round of re immunization was a punch to the arms- still a bit sore but not bad. Flu shot scheduled for this week- no more Covid shots they made me extremely dizzy, I don't mind masking when needed. Do need to hydrate more! 😵‍💫

October 11 (edited)
A MyMyelomaTeam Member

I just started vaccination. I am working, but my office in the warehouse gives me some separation from a lot of people. I can do the flu and RSV at this time. I do not want the covid shot. My immune system crashed after being forced to get the first shot. Bad stuff in that. Next up starting in December I have Polio, Hep A, Hep B, pneumonia, Hib, tetanus, and shingles. No chicken pox or mmr until May 2028. It is long process in three shot series. I exercise regularly and ride my bike. It helps me feel better and stronger. Focus on nutrition and hydration. Positive mental attitude counts big time. I see myself as healed. See it never returned. God will take care of the rest. Be blessed and stay strong. Lynn

October 11
A MyMyelomaTeam Member

My doctor wouldn't let get the MMR until 2 years after my transplant since its a live vaccine. You could ask for a titer to see if you kept your immunity. Some people do, apparently.

October 10
A MyMyelomaTeam Member

I didn't opt to go through the AST as no guarantee of results at MM is incurable.m Diagnosed Jan 1025 MM stage 3. My treatment going on for 22 months has gotten my hemoglobin up to 13 now and the light chains remain abnormal and other labs in red. I was told when asked last month what type MM? The PA seem confused at first as said I have MM and Asher clarified my question saying i am in the myleoma group and didn't know were various types. Finally he states my MM cancer is rare called think he said LGA Kappa MM. Next quarterly will ask the question again with more questions writing down better the quarterly. The oncologist currently prescribed 15mg revlimid 21 days off 7 days, Daratumbah hydralanase subcraneous monthly 1800CC, IVIG immunogloblin 20dosage read on 1 bottle monthly plus acyclovir 400mg twice daily, several months ago got off the dexamethasone after 18 months and after the numerous initial treatment weekly injections removed Velcade when started monthly maintenance in Oct 2025. I do hope you get all your childhood and adult injections for MMR, Shingles, polio, all got as was wiped poor by the chemo from stem cell. I would look into financial grants to assist with your Cobra insurance as many programs hearing are available to assist with medical cost try first the billing folks who may suggest. Disability health insurance under cobra maybe? a Information is free need to ask the questions. good luck

October 8
MyMyelomaTeam

First off, $10K out of pocket is no joke — that's a real burden, and it makes complete sense that returning to work feels necessary. Navigating this while still rebuilding your immune system post-transplant takes real courage.

Since you're still mid-re-immunization schedule, your immune system is in a rebuilding phase, which Show Full Answer

First off, $10K out of pocket is no joke — that's a real burden, and it makes complete sense that returning to work feels necessary. Navigating this while still rebuilding your immune system post-transplant takes real courage.

Since you're still mid-re-immunization schedule, your immune system is in a rebuilding phase, which means extra precautions around customers are really important right now. Beyond masking and hand hygiene, here are some additional layers of protection to consider:

- Avoid touching your face — eyes, nose, and mouth are entry points for viruses
- Clean shared surfaces regularly — counters, door handles, payment terminals
- Stay hydrated — it supports your overall immune function
- Limit time in crowded, poorly ventilated indoor spaces when possible
- Ask about intravenous immunoglobulin (IVIG) — if your antibody levels are still low post-transplant, your oncologist may consider this as added protection
- Check your work environment — can you improve ventilation, add barriers, or limit close contact time with customers? It's also worth having a direct conversation with your oncology team before returning. They can check your current immune function levels and advise whether any timing adjustments to your re-immunization schedule or additional precautions make sense given your specific situation.

Your healthcare team may also be able to connect you with a social worker who knows of financial assistance programs that could help ease that insurance burden — it's worth asking.

October 8

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