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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
West Yarmouth, MA

I could use some advice. My insurance changed since my husband switched jobs and the new one doesn't seem so good with a deductible of $4000 and $6000 out of pocket limit. I had a co-pay assistance from LLS that I just finished plus $900 to pay for my Lenalidomide this month since deductible not met. I was told $1100 for next month and I can't do it. I have medicare A&B but no drug coverage. When I can apply again what should I add? My hope is maybe by next month I'll have met my… read more

May 20
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Answer Summary

Members rallied around a question about affording Lenalidomide after an insurance change, sharing an impressive range of financial resources... Read more

Members rallied around a question about affording Lenalidomide after an insurance change, sharing an impressive range of financial resources to ease the burden. Several members recommended applying for grants through the Healthwell Foundation, Patient Advocate Foundation, and Blood Cancer United, while others suggested calling the State Health Insurance Assistance Program for help navigating Medicare Part D enrollment outside of open enrollment periods. A recurring theme was leaning on cancer center social workers and patient advocates to uncover grants and assistance programs that many members said covered nearly all of their out-of-pocket costs.

A MyMyelomaTeam Member

Medicare plan D does let you pay your copay over 12 months.

May 21
A MyMyelomaTeam Member

I was able to get a grant from Bristol Myers Squibb when I was on Anthem. I'm not able to get the grant on Medicare plan D. The maximum out of pocket is $2100.00 this year. You can try to apply for copay assistance through nonprofits like Blood Cancer United and the Cancer Care Alliance

May 21
A MyMyelomaTeam Member

Nancy,
The Multiple Myeloma Research Foundation says to take advantage of an Oncology Social Worker. Ask your Hematologist to refer you to one. “They can connect you with resources such as a ride to treatment, a grant, or a support group. They can also be someone to talk to.
Paula🌹

June 2 (edited)
A MyMyelomaTeam Member

TotalAssist, the nation’s most comprehensive patient financial assistance program, launches on July 1, 2026. This TotalAssist program will allow patients to apply for assistance in one place. In the mean time you can contact a financial coach through the Healthtree Foundation for Myeloma website. I hope this helps.

June 8 (edited)
A MyMyelomaTeam Member

If your cancer center has a patient advocate office, check in with them. They may be able to find a grant for a grant to help you pay for your medication and other treatments. This is what I did, and I have not had to pay hardly anything since I started treatment in October.

May 20

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