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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
New York, NY

I asked Claude.ai when unrestricted generics of Revlamid / lenalidomide could be developed. I was surprised to learn that as of now (March 2026), the volume restrictions have been lifted and generic manufacturers are legally permitted to sell unrestricted quantities of lenalidomide. Has anyone noticed a drop in how much they or their insurance companies pay for this?

March 25
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A MyMyelomaTeam Member

Mine dropped but I went from 3 weeks on 1 week off to 2 weeks on and 2 weeks off. From around $13,000 to $8000. Since I had previously read that they can be produced for 25 cents a capsule this is beyond absurd.

March 25
A MyMyelomaTeam Member

Kappa, this is from an old Narc who investigated medical professionals in Washington, DC, for ten years. Google " ProPublica: the price of remission. Kappa, your blood will boil.

March 26
A MyMyelomaTeam Member

Good morning
My current problem has been my co-pay assist from BMS is for the Rx Revlimid. My monthly cost is 22,000.00. If Lenalidomide is prescribed I won't receive any co-pay assistance. I am pre-Medicare, and my insurance is really crappy.
I don't know how to obtain the medication for any less money. I've used all the co-pay assist money for the year already. Who can afford this medication? But who can afford not to take it? It is a real stressor.

March 26
MyMyelomaTeam

Has anyone noticed a drop in costs for lenalidomide generics?

That's a great question about the potential cost impact of unrestricted generic lenalidomide availability. Unfortunately, the search results don't include specific information about pricing changes or member experiences with generic lenalidomide costs after Show Full Answer

Has anyone noticed a drop in costs for lenalidomide generics?

That's a great question about the potential cost impact of unrestricted generic lenalidomide availability. Unfortunately, the search results don't include specific information about pricing changes or member experiences with generic lenalidomide costs after volume restrictions were lifted.

Lenalidomide (Revlimid) is widely used in myeloma treatment, both during active therapy and as maintenance after transplant. It's been shown to significantly extend remission periods - keeping myeloma controlled for around 57 months after transplant compared to about 30 months without maintenance therapy.

Since pricing and insurance coverage experiences can vary significantly, you might want to:

* Check directly with your pharmacy about current generic pricing
* Contact your insurance company to see if their coverage has changed
* Ask your treatment team if they've heard feedback from other patients about cost changes

Other MyMyelomaTeam members may have recent experiences to share about their out-of-pocket costs or insurance coverage changes for generic lenalidomide.

March 25

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