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A MyMyelomaTeam Member asked a question 💭
Monticello, IA
March 24
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A MyMyelomaTeam Member

Leisa, I have been considered refractory throughout my experience with myeloma (short terms of remission then it comes back, longest for a year). I am again considered in remission for the past 7-8 months after having been refractory for about a year on an old regimen. So, yes you certainly can go into remission after being refractory. Just keep trying, there are many new effective treatments. Best wishes and prayers!

March 24 (edited)
A MyMyelomaTeam Member

Leisa
Sharing this words with my instant tihinking from my heart and honestly not to hurt anyone feelings.

Yes, some people with refractory multiple myeloma do achieve remission, especially with newer treatments and combination therapies. It can sometimes take trying different lines of treatment before finding what works best for each individual.

Remission can vary from person to person depending for some it may last months, for others it can last years. The journey is not always straightforward, but there are many who continue to respond even after being considered refractory.

I think what matters most is continuing to work closely with your oncology team and not losing hope. Treatments are improving all the time, and there are always new options being developed.
Ask your doctor

Mohammad

March 24
A MyMyelomaTeam Member

Yes I am considered MRD Negative - no cancer cells found - 2 years 1-2-26.

March 25
A MyMyelomaTeam Member

Hi I have not experienced refractory mm. I have IGA Kappa. I’ve been in remission for 18months now. I’m sorry that I don’t know the answer. Prayers, for healing mercies, Nancy C

March 24
A MyMyelomaTeam Member

Hi I personally have not had to deal with refactory myeloma as I am still smoldering but it is my understanding that the Majestec clinical trials had success with treating it. It involves only two drugs. May not help if you have gene mutations but otherwise it was very successful and has been approved by the FDA I understand.

March 24

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