1) How long have you been off All MM Meds
2) What Treatment got you to Negative
3) What was your original MM Diagnosis
4) Any Relapses along the way
Thanks
I haven’t been on meds for over 2 years. I had RVD and a SCT 10 years ago. So far so good!
I was IGG Kappa
2017 diagnosis, stage 3, radiation, 6 months conditioning chemo, Rev, Dex, Kyprolis,
2018 ASCT got me to 5%, 4 months consolidation chemo got me under 3%.
2023 relapse, radiation, chemo
2024 relapse/refractory, radiation, chemo, marrow saturated, spinal fluid cancer, brain poisoned by calcium, given 6 months to live. Lots of chemo later and learning how to walk and I'm on the list for CAR-T .
October 2024 CAR-T was a success and I'm 0% MRD, now I just need my marrow to recover which has been a challenge. No more chemo makes it all worth it.
Same here, no relapse. If anyone is bothered by bone or muscle
pain i just started drinking this 10 mushroom coffee and... and I'm not a coffee drinker but man has it made a difference...
AMAZING... it's folks like you who keep me hopeful on longevity...
I never had the MRD test but have been off all MM meds for 21/2 years. I had RVD and SCT then maintenance rev for 8 years.