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February 27
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Lab Tests for Multiple Myeloma: What You Need To Know Read Article...
A MyMyelomaTeam Member

Yes JohnCatlett you absolutely right,

Before I also had same problem
I had done my right hand Carpal Tunnel surgery then MM appeared.Now no issues with it.Thanks to God for this 🙏

As a myeloma patient, burning pain in the wrists and hands is often neuropathy (nerve damage). It can be caused by myeloma itself or treatments like Bortezomib (Velcade) or Lenalidomide (Revlimid).

It usually feels like burning, tingling, pins & needles, sometimes worse at night.

It can also be carpal tunnel (nerve compression) or less commonly bone pain.

Please tell your doctor early on neuropathy is real and dose
adjustments can help. 🙏

Never walk alone in this.☺️

March 2
A MyMyelomaTeam Member

It sounds like neuropathy. I have it in feet,legs,arms and hands. I have tried ice and heat They do not make mine any worse not sure either helps. Paraffin feels good while I do it but once the session is over the neuropathy wakes back up.

I put on gloves with rubber palms to open a soda or water bottle

I can not handle pills. My wife puts them in a container I can open. I pour them in a bowl where I use a spoon to pick them up and take them.

Zippers- I place a light weight Keychain with a carabiner on them so I can grab it.

I hope something I rambled about will help you.

March 2
MyMyelomaTeam

Why do your wrists and hands burn and feel so painful with multiple myeloma?

The burning and pain in your hands and wrists could be due to peripheral neuropathy, a common complication of myeloma. This happens when abnormal antibodies produced by myeloma cells damage the nerves, causing symptoms like:

- Burning sensations Show Full Answer

Why do your wrists and hands burn and feel so painful with multiple myeloma?

The burning and pain in your hands and wrists could be due to peripheral neuropathy, a common complication of myeloma. This happens when abnormal antibodies produced by myeloma cells damage the nerves, causing symptoms like:

- Burning sensations
- Numbness
- Tingling or "pins-and-needles" feeling
- Weakness

These symptoms typically affect the hands and feet. A MyMyelomaTeam member described experiencing "neuropathy in hands (oh my!!!!) and feet" with significant pain.

Additionally, some myeloma treatments can cause or worsen nerve damage. Certain medications used to treat myeloma are known to cause neuropathy as a side effect.

It's important to tell your oncology team about this burning pain. They can help determine the exact cause and provide treatment options to manage these uncomfortable symptoms. Neuropathy can range from mild to severe, but there are ways to help relieve the pain and improve your quality of life.

February 27

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want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA

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