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Having SCT on 28th June, why couldn’t I have SCT initially instead of going through hell and back with all the chemotherapy and the damage it has caused to my body only to get back to a M protein of 5 again and where it started?
I have got x 2 specialists and they both cannot give me an answer except that is not the way it works?
Why isn’t it? I’m back where I started apart from all the misery, pain and despair that this Cancer causes 🤷🏼‍♀️

June 18, 2024
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A MyMyelomaTeam Member

I hear what you are saying but the end goal was always a SCT for me and my oncology Dr’s (they told me I was the perfect candidate as no damage to vital organs) hence why not just do it initially! It’s ended up costing more because of all the Chemotherapy's costs and now SCT cost as well 🤷🏼‍♀️

June 18, 2024
A MyMyelomaTeam Member

Thanks Mark, I look forward to hearing the answer.

June 18, 2024
A MyMyelomaTeam Member

Well you have an excellent point. This Friday I have my monthly maintenance chemo and will ask my doctor!

June 18, 2024
A MyMyelomaTeam Member

I’m not sure this will answer your question since you are in South Africa but here in the states Medicare will not pay the exorbitant amount for the ASCT unless you get induction chemo therapy first. If you can achieve remission quickly from 16 weeks of infusions then you may not need the bone marrow transplant.

When my doctor told me I was not in remission he said I not only needed an ASCT but I needed two!
Known as a tandem or back-to-back transplant. Medicare balked and said, “no, we are not going to pay for that!” and they postponed the second until the next calendar year.

But I lucked out by going into remission after the first transplant so it was a moot point.

My hunch is if you ask your provider (who pays the bills) or your oncology team if you could bypass induction and go straight to transplant they will say, “are you going to pay for it out of your own pocket?”

It is what it is because this is the way the system works. If you have enough money you can buck the system. And you better have piles!

June 18, 2024
A MyMyelomaTeam Member

This doesn’t answer my question?

June 18, 2024

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