I was reading Rare Cancer News this morning. They had an article called “Even Remission isn’t easy with Multiple Myeloma.” She (Gina) talks about always expecting her cancer to return, “like a mythical Hydra with new heads springing up each time one gets chopped off.” She is doing well with treatment and still able to work and travel. Even so, it sounds like she is looking over her shoulder all the time. This is where my faith comes in. If it is God’s will that my time is up, then I pray I will go to heaven. If it is not my time, I won’t progress for awhile or I will be cured. My family has been blessed with many miracles. Life saving and healing miracles. My son was moved into a private room to die, just before he turned 6 years old. A friend from El Paso drove all the way to Southern California in an old SUV and laid hands on my son and prayed over him. We went home hours later. The doctors could not explain it. He is 38 now, and many miracles have happened over the years. Pray, pray, pray. Hope, hope, hope. Love, love, love.💕
HTTPS://rarecancernwes.com
Paula🌹

@A MyMyelomaTeam Member
Just sharing

Actualmente vivo con mieloma de
ligera IgG Lambda, con marcadores de alto riesgo: t(4;14), pérdida de 1p y deleción de TP53. Esto significa que necesito un seguimiento exhaustivo y un tratamiento cuidadoso, pero no todo está perdido. Con las terapias modernas, las revisiones y la fe en Dios, es posible vivir bien.

Incluso ahora mismo estoy en tratamiento de mantenimiento con VRd e inyecciones cada dos semanas. Llevo tres años luchando contra el mieloma como si fuera una maratón.

Algunos días siento que es como un gigante silencioso que descansa dentro de mí. Lo observo atentamente durante las pruebas, las revisiones y el tratamiento, esperando que se mantenga tranquilo. Pero sé que sigue ahí, y la vigilancia es parte de mi camino.

Esta enfermedad ha sido una llamada de atención de Dios, recordándome que debo entregarle mi corazón por completo, reflexionar sobre la vida y vivir con gratitud, humildad y fe. Cada desafío es una oportunidad para crecer espiritualmente, confiar en su plan y fortalecer mi alma. Con las terapias modernas, la guía médica, el apoyo de familiares y amigos, y la bendición de Dios, es posible vivir bien, mantenerse en remisión y disfrutar cada día como si fuera una vida normal.

Sigamos compartiendo palabras positivas y oraciones por el grupo.

Gracias ☺️

Yomismo
Just to share 🤲

I am living with light chain IgG Lambda myeloma, with high-risk markers: t(4;14), loss of 1p, and TP53 deletion. This means I need close monitoring and careful treatment, but it is not hopeless. With modern therapies, regular follow-ups, and faith in God, it is possible to live well.

Right now, I am on maintenance with VRd, receiving injections every fortnight. This is my third year running with myeloma, like a long-distance marathon.

Some days it feels like a quiet giant resting within me. I watch it carefully through tests, follow-ups, and treatment, hoping it remains calm. But I know it is still there, and vigilance is part of my journey.

This disease has been a wake-up call from God, reminding me to turn my heart fully to Him, to reflect on life, and to live with gratitude, humility, and faith. Every challenge is an opportunity to grow spiritually, trust His plan, and strengthen my soul.

With modern therapies, the guidance of doctors, the support of family and friends, and God’s blessings, it is possible to live well, stay in remission, and cherish each day as a gift.

May we all continue to share positive words and prayers for this group.

Thank you ☺️
Sukor
God bless

Mentioned Users

A MyMyelo...

@A MyMyelomaTeam Member Neuropathy hit me when I was on Velcade back in 2010. After my SCT in 2011 they stopped the Velcade and the Neuropathy pain went away. 😁

Mentioned Users

A MyMyelo...

That’s beautiful and moving MohdSukor. I tend to think of MM as an angry bear either hibernating or awake and trying to devour you. Playing off your wonderful poem, I give you The Bear-

The Bear

A great bear sleeps in the mountain den.
Winter quiets his breath,
and the forest feels gentle again.

Symptoms fade.
Strength returns like spring sunlight
through bare branches.

But the bear still lives there.
One day he will wake—
hungry from the long winter.

So we walk the woods with open eyes,
not with fear, but with respect.

Grateful for the quiet season.
Hopeful for the path ahead,
and faith for whatever day may come.

@A MyMyelomaTeam Member
To Share
To All

The Mighty God takes the souls at the time of their death, and those that do not die [He takes] during their sleep. Then He keeps those for which He has decreed death and releases the others for a specified term. Indeed in that are signs for a people who give thought.”🙏

. Paula 🌹

Thank you for sharing such a powerful and heartfelt story. Reading about your son truly reminds us that life can hold miracles we cannot always explain.

Your words about faith, prayer, hope, and love are very meaningful. Many of us living with multiple myeloma understand that feeling Gina described as like always looking over our shoulder, wondering when the disease might return. It can sometimes feel like a long journey of watchfulness.

That is why faith becomes such an important part of the path for many of us. As you said so beautifully, we trust that our lives are in God’s hands. If it is not our time, we continue walking forward. And if challenges come, we face them with courage, prayer, and hope.

Your story about your son is a powerful reminder that miracles can happen in ways doctors cannot always explain. Sometimes healing comes through medicine, sometimes through time, and sometimes through faith and the love of others.

So we continue to pray, hope, and support one another in this community.

And while the “sleeping giant” rests quietly, we try to live each day with gratitude for appreciating the time, the people, and the blessings we have.

Pray, 🙏
Hope,🤲
Love, 🫶🏻

Thank you for sharing your light with us, Paula.🌹

🩸🙂
MohSukor
God bless

Mentioned Users

A MyMyelo...