Think positive and it sounds like you are heading the right way.
Take care and will be praying for you!

Hi Paula,

I receive ClonoSEQ blood tests every 3 to 4 months to check my MRD status. My last one was December 28 2025. My Chronic lymphocytic leukemia (CLL) was 0 cells detected and my Multiple myeloma cells was 75 in August 2025 and now 7 cells.

I want to say I'll probably be MRD negative on my next ClonoSEQ blood test which will be March or April 2026, but I recently learned that only 20 to 30% MM patients achieve MRD negative and patients in single digits like me (7) amount to only 10% of MM patients. I am thankful for being one of the MM patients in the single digit range. These numbers are so low. It's disappointing.

I will continue to strive to reach MRD negative. Based on everything I do… WFPB diet, supplements, regular exercise, regular sauna sessions for detox, grounding, non-toxic personal care and cleaning products etc, I’m always trying to make wise choices in everything I do to get my health back and maintain it.

At the end of my treatment when my M-spike was 3 mg, my doctor said it was DarzalexFastPro that was the cause of the M-spike. After Darzalex was discontinued the M-spike disappeared.

You should try using your massager or TENS machine and see if it helps your feet. Anything that will stimulate blood flow should help.

Vicki7 ☺️

Vicki,
Actually, I was referring to check to see your MRD status. Sometimes the drugs can cause a false M-spike. I have had no treatment yet, so the neuropathy is not from that. It is either from high sugar, kidneys or M-spike. I do have a massager and Tens machine.
Paula🌹

My IgG was down to 212. I've been getting IVIG for several months. You will be disappointed if you are expecting to have more energy after getting an IVIG infusion. If anything, I am actually more tired for a few days afterwards. Fatigue is one of the side effects. I hope it keeps me out of the hospital though.

I had cold after cold last winter and a blood test determined my IgG level was 186. 100 is dangerous. I have been on monthly infusions since February 2025 and it is now 545. I would definitely talk to your oncologist about your concern.