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A MyMyelomaTeam Member asked a question 💭
Crestview, FL
July 8
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Answer Summary

Members discussed IVIG treatment after stem cell transplant, sharing a wide range of experiences, with some starting infusions years after... Read more

Members discussed IVIG treatment after stem cell transplant, sharing a wide range of experiences, with some starting infusions years after their transplant and others beginning when immunoglobulin levels dropped below certain thresholds. Several members noted that side effects were generally mild, including lightheadedness, fatigue, or headaches, and that infusion times often shortened once doctors knew how well a patient tolerated the drip. A recurring theme was that regular IVIG helped members avoid frequent infections, and many encouraged others to discuss the option with their care team, especially heading into cold and flu season.

A MyMyelomaTeam Member

My transplant doctor puts anyone with IgG under 300 on IVIg infusions. Ive been on them monthly since 2020, and my numbers just now went up to 800!

July 11
A MyMyelomaTeam Member

Joy,
I just read an article yesterday on Cancer Therapy Advisor. Maybe you could Google it?
“EHA 2026: Dr Rahul Banerjee Discusses New Options in Multiple Myeloma (Video).” Published 7-6-26
In it they mentioned for these new trials, they don’t wait for antibody levels to drop below a threshold, but start them from the first cycle. He says Insurance companies push back, but they think it is essential to prevent infections.
Paula🌹

July 11
A MyMyelomaTeam Member

It was three years after SCT that I had IVIG infusions as I had 3 colds one after another. Haven't had a cold since and still have infusions monthly

July 11
A MyMyelomaTeam Member

I have been on it for almost 11 years. Seems my immune system never rebooted after transplant. Sometimes I get a headache after but that’s it for side effects.

July 11
A MyMyelomaTeam Member

I haven’t had a SCT, but I can share my IVIG story- which I’m repeating on here. My immunoglobulins have been stable over the past year but I couldn’t shake a chest cold I caught last summer that continued well into the fall. My dr suggested monthly IVIG infusions starting last October and it cleared the cold from my system quickly. Haven’t had a cold since then and I stopped the infusion in April. Seems to be no big thing. I would discuss getting an infusion just to boost your immunity so you can better fight an infection- especially as we get into the fall cold and flu season.

July 11

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