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If I have stem cell transplant do I have to have a caregiver with me 24/7 for 100 days?( not available locally) I don’t have anyone 🤷🏼‍♀️

A MyMyelomaTeam Member asked a question 💭
Duluth, MN

multiple myeloma

January 6
 · 
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MyMyelomaTeam

Do you need a caregiver 24/7 for 100 days after a stem cell transplant?

Not necessarily 24/7, but you will need support during recovery. The intensity and duration depend on your specific situation and how your body responds to treatment.

Many stem cell transplants now happen on an outpatient basis, with daily monitoring Show Full Answer

Do you need a caregiver 24/7 for 100 days after a stem cell transplant?

Not necessarily 24/7, but you will need support during recovery. The intensity and duration depend on your specific situation and how your body responds to treatment.

Many stem cell transplants now happen on an outpatient basis, with daily monitoring for side effects. However, most people are admitted to the hospital for a two- to three-week stay during initial recovery.

After discharge, you'll need help with:
* Getting to follow-up appointments
* Managing medications (antibiotics, antivirals, antifungals)
* Monitoring for complications
* Daily activities during periods of fatigue and weakness

The recovery period varies by person. You may experience fatigue, nausea, diarrhea, and other side effects that make having someone nearby helpful, especially in the first several weeks.

Since you don't have local support, talk with your healthcare team about your situation. They may be able to connect you with resources or adjust your care plan. Some transplant centers have specific requirements about caregiver availability, so it's important to discuss this upfront.

Consider reaching out to organizations that provide housing and support assistance for people undergoing transplants. Your medical team can also help identify local resources or alternative arrangements that might work for your situation.

January 6
A MyMyelomaTeam Member

Hi Gaga, I was diagnosed in March '24 at age 67 with stage 3 Lambda light chains MM with the 17p deletion. I was asymptomatic at the time and tolerated treatments well. I also had no one to watch me as I live alone and wanted to work until I turned 70. So, I turned down the SCT and instead continued treatments until I achieved remission in August '24. Nearly 2 years in now, I am still asymptomatic and tolerating maintenance well. In March I will have another BMB and if I am negative will be down to 1 maintenance drug. Everyone is different, good luck with your decision.

January 7

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