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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Santa Monica, CA

He probably has MM waiting on pet scan this werk

September 21, 2025
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A MyMyelomaTeam Member

@A MyMyelomaTeam Member
Mostly people take anywhere from 2mg, to 5mg, to a max of 10mg for sleep. Melatonin is a hormone that we make that helps us sleep.

I know of a Cancer Treatment Center that’s added very high doses of melatonin to help with the success of their Treatments for a variety of Cancers. Often up to 100mg to 200mg daily.

I’d found multiple references to taking 100mg of melatonin shortly before PET/CTs and CTs to help flush the radiation from the body. I believe Dr Brandy had recommended the same (it’s been quite some time ago), though Dr Brandy also provided me a Link to the Video on high doses melatonin.

I think it was my own idea/experience to try the 60mg melatonin for my neuropathy. I was getting very significant cramps in my feet and legs, late at night as I was trying to get to sleep. I had the melatonin at my nightstand, took the 60mg and in less than a minute all the muscles in my legs and feet relaxed and I comfortably fell asleep.

A few nights later, same thing and same results so I’ve continued ever since. This is probably not too long after I had discontinued all of the opiates that I had used for the 2-1/2 years prior (changing prescriptions along the way). I’ve been off all for almost 18 months and I only take regular Tylenol (500mg) 3 or 4 times daily (typically just 3).

Lately, I’ve been taking melatonin less often - just 3 or 4 times weekly but if needed, I’m comfortable with it nightly.

I do make sure to take last thing at night

September 22, 2025
A MyMyelomaTeam Member

@A MyMyelomaTeam Member interesting isn’t that for sleep? Do you take just at night? Very interested. Have a good day!

September 22, 2025
A MyMyelomaTeam Member

Cannabis gummies

As a separate thing Very oddly- I take 60mg melatonin quick dissolve Natrol (10 mg per). These provide almost instant relief to my stinging and burning hands and feet - And I also notice significant relaxation of my muscles, relieving all sorts of cramping. I’ve been taking melatonin for well over a year. It’s been 17 months since I discontinued all opiates (Oxycodone, Xzampta, Tylenol w/Codeine, Morphine - phased all of them out)

September 21, 2025
A MyMyelomaTeam Member

One of the members here told me to try Aspircream and I got the roll on type and I do think it helps a lot. Don’t wait go get some. Wishing you the best! 👍

September 21, 2025
MyMyelomaTeam

Question: What pain management options are available for severe back pain while waiting for myeloma diagnosis?

While waiting for test results, it's crucial to speak with a doctor before taking any pain medications, especially over-the-counter NSAIDs like aspirin or ibuprofen, as these may interfere with future treatments.

Show Full Answer

Question: What pain management options are available for severe back pain while waiting for myeloma diagnosis?

While waiting for test results, it's crucial to speak with a doctor before taking any pain medications, especially over-the-counter NSAIDs like aspirin or ibuprofen, as these may interfere with future treatments.

Here are some non-medication approaches that may provide temporary relief:
• Using heating pads or ice packs
• Adjusting bed position/sleeping position
• Physical therapy (with doctor's approval)
• Gentle movement as tolerated Some complementary therapies that may help manage pain when approved by your healthcare team include:
• Acupuncture or acupressure
• Gentle yoga
• Meditation
• Medical massage

Remember that back pain management should be guided by healthcare professionals who can determine its exact cause and recommend the most appropriate treatments based on the diagnosis.

September 21, 2025

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