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February 1, 2025
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A MyMyelomaTeam Member

Mary,
I’m sorry to hear that SCT did not put you in remission. Many have posted that just months later, they need treatment again.💕
Paula🌹

February 1, 2025
A MyMyelomaTeam Member

Thank you Paula...I will definitely look up this book. I was smoldering since 2013. So It was a long time before MM set in...Keep up your visits...good luck and thank you for all your advice. I just picked the wrong card, I suppose...but I have 5 grands that need their Yaya..so I'm not going anywhere soon..:)

February 2, 2025
A MyMyelomaTeam Member

Mary,
You might find this question asked previously. Go to Q & A and see if you can find some like it. I am Smoldering and am watching to see what happens to others and their experiences. Some do well and others don’t. It confuses the doctors, because no one person reacts the same. Check out Dr Brandy’s book “Beat Back Cancer Naturally.” He has MM and is doing great. He has a lot of good tips. A friend of mine took DDR Prime (frankincense) during her chemo for many different cancers and she never felt the bad effects of treatment, and she worked every day. She is probably 90 now.
Paula🌹

February 1, 2025
A MyMyelomaTeam Member

I was afraid of that!
The good news is I feel fine, except for nerve pain in my arm caused from a bp cuff that got too tight, and of course being bald!lol

My stem cell collection and distribution was a struggle from the beginning mainly because a year before I was being treated for leukemia. So it did a number on my marrow. I couldn’t harvest enough cells for two transplants.

Just curious if anyone else had this happen?
Thank you Paula for your response!

February 1, 2025
MyMyelomaTeam

If myeloma labs still show signs of cancer after a stem cell transplant, it indicates that the myeloma has not fully responded to the treatment. This can happen in some cases. Next steps often include additional treatments such as maintenance therapy, other medications, or possibly another type of transplant. It's essential Show Full Answer

If myeloma labs still show signs of cancer after a stem cell transplant, it indicates that the myeloma has not fully responded to the treatment. This can happen in some cases. Next steps often include additional treatments such as maintenance therapy, other medications, or possibly another type of transplant. It's essential to work closely with a healthcare team to determine the best course of action.

February 1, 2025

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