I was told by a doctor that studies are being done as to the length of time We stay on revlimid during maintenance.
My husband has been on Revlimid since he started treatment 4 years ago. Doctor said he will be on it forever … it’s now 5 mg 21 days out of 28 days. Everything is going well for him so far.
I was in a clinical trial taking Revlimed, and I’m fine. I did have periodic diarrhea, but now that I’m off Revlimed and in remission, I’m fine.
I have been on revlimed for 2 years
Doing ok
Good luck to all and many hugs
I was in the clinical trial about three years and was in remission so I was taken off Revlimed. entire time. We’ll see how it goes when I go for my follow-up appt. after six months.
How long were you on Remlivid? Was the trial not taking any cancer meds?