Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Hollis AK

My close-up vision has gotten pretty bad. I have a cataract, so corrective lenses don't really help. I would have to just use the one unaffected eye. I read that vision can get better but it may take a long time......if at all.

February 20, 2023
 · 
Reactions

Answer Summary

Members widely confirmed experiencing vision problems since their Multiple Myeloma diagnosis, with cataracts being the most commonly shared... Read more

Members widely confirmed experiencing vision problems since their Multiple Myeloma diagnosis, with cataracts being the most commonly shared concern and many pointing to steroids like dexamethasone and drugs like Revlimid and Velcade as likely causes. Several members strongly encouraged cataract surgery, sharing positive outcomes including 20/20 vision after the procedure, while others described challenges like blurry vision, double vision, dry eyes, and even declining optic nerve health. A recurring theme was the difficulty of separating MM treatment side effects from age-related changes, paired with encouragement to stay proactive with regular eye exams.

A MyMyelomaTeam Member

I had cataract surgery on my left eye in December of 2020. Diagnosed with MM August 2020. I drive tractor trailers for big employer. For 9 months my other eye getting blurry. Waiting list for cataract surgery was 5 months. So was driving with one eye closed to get clear vision. Worked but would not do again. Nighttime was the worst. Well finally had right eye cataract surgery. My Doctor said old lense was really bad. So after healing, my vision now 2020!!!!! Yeah . Just need reading glasses for up close. I really believe this is due to my steroids Revlamid, dexamethasone, Ninlaro. I’m 61.

August 7, 2023
A MyMyelomaTeam Member

Good question. Yes mine has gotten worse.

June 12, 2023
A MyMyelomaTeam Member

Greetings from Alaska this is day four after cataract surgery my sight was getting to be pretty bad. I had prisms around all lights. I’ve been off of treatment for a month to get surgery done the next time it’ll be the right eye, but that won’t be until the end of October or November. The doctor said it was really bad and I am sure the Velcade dexamethasone and Revlimid, as well as the high-dose melphalan that I had before my SCT are the cause. I’m also suffering with extremely dry eyes so that’s been an issue. I ended up with scratch on my cornea. Boy do we have a lot of issues we have to pay attention too. The best part of this I won’t have to pay $500 anymore for eyeglasses that makes me happy.

August 27, 2023
A MyMyelomaTeam Member

I we t to the eye Dr the other day and my vision. My left eye had really changed. I had on cataract and he now says there are ywo . It is a different type and very aggressive I could barely see the eye chart. My oncologist wants to talk to the surgeon and set up for me to ha e cataract surgery. My eye Dr a
Said it will continue to grow and get worse fast. So all I can say if you ha e eye problems ha e them checked .best of luck to all. LYNN n Va

August 7, 2023
A MyMyelomaTeam Member

Your information was great and I also have a cataract that is progressing and I don't try to drive anymore with the meds I am on alot of them make me sleepy and I don't dare try to drive. I will be going to my eye doctor in a month and he had recommended the surgery glad to know yours went so well.

July 4, 2023

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Finger Lakes NY