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A MyMyelomaTeam Member asked a question 💭
Gaines, PA

Any experience numbness in chin, lower lip and teeth? Began in Jan., only left side of chin and lower lip. Did MRI to rule out mini-stroke. Drs. confident it’s not numb chin syndrome, a rare
cancer. Today it spread to right side of chin and lower lip.

March 20, 2022
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Reactions
A MyMyelomaTeam Member

Hi Deb! I had the same exact numbness (left side of chin area) and the docs also had me go to the ER to rule out a stroke. It felt like the first minutes you are given novocane. I was told it was the myeloma causing the numbness. It lasted 3 months and went away a couple days after my CAR-T (December 2021). To date, no numbness and cancer in remission! Best of luck to you!

March 28, 2022
A MyMyelomaTeam Member

I have neuropathy in my feet (not painful, just tingling) and numbness in my thumbs and forefingers. Nothing horrible , just weird feeling

March 20, 2022
A MyMyelomaTeam Member

Same here but not in chin ..Numbness in legs and hands….I am under treatment of Chemo ( Zaralex and POMALYST-3 mg)….Be strong 🙏🙏🙏🌹🌹

March 20, 2022
A MyMyelomaTeam Member

Welcom Deb! I do not know any thing about this numbness, but I sure don't like it! I am so glad you ruled out mini stroke. Did your doctor rule out Guilleon Barres disease?? It is a slow paralazing of the muscles disease. I may have miss-spelled it but check it out on google or medical friend. My niece had it briefly and just the right side of her face was effected. A neighbor also had it and it effected his whole body! Please let me know when this is diagnosed! I'm rooting for you!....................Elly Don' be shy because it's sunday. ER hospitals really check out a mystery!

March 20, 2022

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