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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Prescott, AZ

Yes have diagnosed Blood Clots

1 day ago
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Reactions
A MyMyelomaTeam Member

Jack,
Thank you for your service.🇺🇸 Isn’t it amazing how long ago you were exposed to get MM? Too many in New York are dying from the Twin Towers contamination. It’s interesting that your white blood cell count is high. That’s more a trait of Leukemia. Mine has been below normal since my first blood test in 2011.
Paula🌹

5 hours ago
A MyMyelomaTeam Member

Blood Clots is how I found out I had Biclonal Gamapathy from Agent Orange and Camp Lejuene although I had been carrying it for many years as I was medivaced and discharged for it in 1970 from the Marine Corps. I am on Eliquis for the clots I do like your thoughts on Vitamin E. I do believe E is fat soluable so not sure how that can work with the Blood part of the disease the White Blood Cell count being high.

16 hours ago
A MyMyelomaTeam Member

Jack,
I’m sorry to hear you have blood clots. They can be very painful. My brother collapsed in his home and fortunately called 911. A blood clot went to his brain. Now they are trying to determine what caused it. With ordinary people, it’s usually the heart, but with MM blood clots can form anywhere, since MM thickens the blood. I take 800 IU of Vitamin E complex everyday to thin my blood naturally. I think blood clots are a side effect that MM doctors don’t address enough. I hope you are on blood thinners and feel better soon. A Cardiologist can follow you and order Pro-time tests (blood clotting test) and prescribe blood thinners. Of course, talk to your Hematologist for guidance.
Paula🌹

17 hours ago (edited)
MyMyelomaTeam

Yes, myeloma can directly cause blood clots — and it's more common than many people realize. Myeloma cells release substances into the blood that make it thicker and "stickier," which increases the chances of clots forming. This can happen even before any treatment begins. There are a few types of blood clots associated Show Full Answer

Yes, myeloma can directly cause blood clots — and it's more common than many people realize. Myeloma cells release substances into the blood that make it thicker and "stickier," which increases the chances of clots forming. This can happen even before any treatment begins. There are a few types of blood clots associated with myeloma worth knowing about:

- Deep Vein Thrombosis (DVT) — clots in the veins, often in the legs or thighs
- Pulmonary Embolism — when a clot travels to the lungs
- Arterial Thrombosis — clots in the arteries, which can affect major organs Myeloma treatments can also raise the risk further. These include:

- Chemotherapy and radiation
- Immunomodulatory therapies
- Stem cell transplants
- IV catheters or ports
- High-dose dexamethasone Since a diagnosis has already been confirmed, it's really important to stay in close contact with the care team. They can assess individual risk factors and may recommend blood thinners (anticoagulants) as a preventive or ongoing measure.

Watch for urgent warning signs like chest pain, shortness of breath, leg swelling, or sudden weakness — these need immediate medical attention.

1 day ago

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