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October 8
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MyMyelomaTeam

Sleep problems and insomnia are really common with myeloma β€” you're definitely not alone in this. People with myeloma are actually twice as likely to experience sleep difficulties compared to the general population. Several factors tied to myeloma and its treatment can contribute to poor sleep.

Here are some of the main Show Full Answer

Sleep problems and insomnia are really common with myeloma β€” you're definitely not alone in this. People with myeloma are actually twice as likely to experience sleep difficulties compared to the general population. Several factors tied to myeloma and its treatment can contribute to poor sleep.

Here are some of the main culprits:

- Pain β€” Bone pain and peripheral neuropathy (nerve pain, tingling, or numbness in hands and feet) can be worse at night
- Extreme fatigue β€” Myeloma-related exhaustion is different from regular tiredness and can paradoxically disrupt sleep
- Anemia β€” Low red blood cell levels reduce oxygen in the body, affecting energy and sleep
- Steroids β€” Medications like dexamethasone can cause hyperactivity and insomnia, especially if taken later in the day. As one MyMyelomaTeam member put it: "Always take steroids in the morning, or you can forget about sleeping at night!"
- Anxiety and depression β€” The emotional weight of a myeloma diagnosis can seriously disrupt sleep
- Hot flashes and night sweats β€” These can be triggered by certain treatments and wake you up during the night There are several things that may help improve sleep:

- Talk to your oncologist β€” They can adjust medications, suggest sleep aids, or refer you to a specialist
- Take steroids in the morning if they're part of your treatment
- Limit daytime naps so they don't interfere with nighttime sleep
- Add gentle physical activity to your routine, with guidance from your care team
- Try relaxation techniques like deep breathing or cognitive behavioral therapy
- Use a fan or wear loose clothing to manage night sweats

Some MyMyelomaTeam members have found relief through prescribed sleep aids, melatonin, or medical marijuana (where legal). Always check with your doctor before adding anything new, even over-the-counter options, as some can interact with myeloma treatments.

October 8

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Columbus, OH