I am being my own advocate.......which, in these times is not always welcomed.

I'll be back when I have something to add to the conversations. 👋
💛✊
Be Well!

No response yet from the " ambassadors", or staff. .....I keep checking my profile and story and there is only my basic stats; name, basic information.

I keep track of my medical records too. I'm speaking about this site, and how it has changed. I am not able to find my original bio and updates any longer. I've sent two messages to see if here is something that can be done to restore my original bio. So far I've heard nothing, except what AI has to say, which did not work. I can collect my medical information from My Chart and a lot of the copies that I used to make....in the beginning of treatment but why.......you know? I go to the " stories" section and there is just a heading that I should share my ...experiences ( paraphrasing ). Is anyone's past bio missing besides mine?
It's not a HUGE deal, but it is a question that I would like the answer to. From 2019 to recently, I've updated and I don't remember what I wrote. So maybe I should just " stick to the facts ma"m "? Nothing but MM stats now? Am I over reacting? Is this site ( along with other morbidity sites under the same company ), only about collecting information, Period, now? My Myeloma Team is not the only condition that this company offers for support...........?