Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Toronto, ON
September 6
 · 
Be the first to react
A MyMyelomaTeam Member

Hi Rick, thanks for the reply. My first labs will be at the end of this month. I do exercise when I’m not ill. My concern is my IgM has always been low and from what I’ve read these are the first responders to a virus. Not sure how this plays into others who have ended treatments. Will post my findings after the lab results roll in. Take good care

5 days ago
A MyMyelomaTeam Member

I stopped treatments after 2 years and have been off with more energy. Ran a 10k today first time in 7 years, have been doing 8 mile hill hikes. Trying to help myself stay off meds, I will be 70 next month.

September 6
A MyMyelomaTeam Member

I have mm 6 years. I stopped treatment after I had covid. Was cancer free for 2 1/2 years. Now I took tecvali for 1 year and stopped treatment. Have been cancer free for 1 1/2 years. My doctor said he thinks my immune system is getting stronger and maybe I will stay cancer free!!!! Hope so

September 6
A MyMyelomaTeam Member

Hi Larry5, actually I hadn't noticed any issues after ending all treatments. Have you done blood tests after ending treatments? I will have my 3rd month of blood tests next week, if numbers look good I will be moved to testing every 3 months. Have you done any exercise to possibly help you gain energy?

September 8
A MyMyelomaTeam Member

Hi Rick and Congrats. I will be 2 months off treatment 9/8/26. Biggest issue is immune system issues. How long after stopping treatment did you begin to see improvements?
Thank you in advance,
Larry 5

September 7

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Ontario, CA

A MyMyelomaTeam Member asked a question 💭
Caboolture, AU