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He seems very confused. Can it be the chemo brain or maybe the tumor in head behind his left eye?

August 1
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Answer Summary

Members rallied around a caregiver asking whether her husband's confusion and trouble forming words could be chemo brain or a tumor, and the... Read more

Members rallied around a caregiver asking whether her husband's confusion and trouble forming words could be chemo brain or a tumor, and the situation became urgent when she shared he was taken to the ER with a tumor and fluid on the brain caused by prior radiation. Several members offered perspective from personal experience, noting that medications like Revlimid can cause brain fog and word-finding difficulties, with one member sharing that mental clarity returned after a medication break. A recurring theme was the importance of reaching out to the care team right away, not panicking, and leaning on friends, family, and faith for support during such a hard time.

A MyMyelomaTeam Member

I was concerned about my memory issues so I went to go thru a cognitive testing to put my mind at ease. My dad lost his mind as did all his siblings. That heavens- it’s chemo brain but I do word searches & puzzles to keep my mind sharp. But I still draw blanks at times but it helps that I don’t panic which only makes it worst.

August 4
A MyMyelomaTeam Member

It’s a known issue that being on MM treatment can cause forgetfulness and brain fog. I’ve documented my own struggles with this side effect in a post on here. That leads to one thinking they’re in rapid mental decline. I’ve recently taken a medication holiday and I can assure you that once off the drugs your mental acuity comes back.

August 5
A MyMyelomaTeam Member

Judy;
Many blessings to you both🩷 These challenges can be so difficult…
Sirane

August 4
A MyMyelomaTeam Member

Turns out I had to take him to the ER and he has a tumor and fluid on the brain and pushing on his brain

August 4
A MyMyelomaTeam Member

Hi Judy - I'm sorry this is happening. This must be so difficult.
Call in the calvary - reach out to your husband's care team and ask for help. If there is someone who can come be with you - friend or family - reach out. Phone calls are good too. You need support through this too. May the Lord bless you and keep you, and make His Face to shine upon you, and grant you his peace. Blessings. ♥️

August 2

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San Francisco, CA