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MyMyelomaTeam asked a question 💭
San Francisco, CA

Feel free to share what helped, what didn’t, and anything you wish you’d known earlier. Your experience could really help someone else here 💙

This could include medications, lifestyle changes, home remedies, or alternative therapies. Everyone’s journey is different, and hearing real experiences can be so helpful. Share as much or as little as you’re comfortable with. #TreatmentJourney

May 8
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Answer Summary

Members responding to the treatment journey question shared a wide range of experiences with Multiple Myeloma, including induction regimens... Read more

Members responding to the treatment journey question shared a wide range of experiences with Multiple Myeloma, including induction regimens like Darzalex, Revlimid, and Velcade, stem cell transplants, CAR-T therapy, and newer bispecific treatments like Talvey and Tecvayli, with many reporting remission and others still navigating relapses. Several members highlighted lifestyle adjustments such as staying hydrated, light exercise, rest, supplements, and anti-inflammatory diets as helpful additions alongside medical treatment. A recurring theme was the importance of listening to your body, leaning on faith and family, and finding hope in long-term survivors.

A MyMyelomaTeam Member

There are days when the body feels like it’s under attack. Days when fatigue hits hard, when pain speaks louder than thoughts, and when everything inside you says “slow down.” But I’m still here. Still standing. Still fighting.

I’ve walked through treatments like **Revlimid and Velcade, and nothing about this path has been easy. But I’ve learned this: pain is real—but so is resilience.

I don’t measure myself by how I feel on my worst day. I measure myself by the fact that I refuse to stop showing up.

I’ve stopped asking “why me” and started living with “try me.”

What I didn’t expect was how much strength would come from simply not giving up the not from being strong all the time, but from continuing even when I don’t feel strong. A fighter is not someone who never falls down, but someone who always finds a way to rise again.

Keep going. Even slow progress is still progress. Even tired steps are still forward movement. We are still here, and that means we are still fighting.

To anyone fighting this battle will stand your ground. Breathe through the pain. Push through the storm. You are not fragile. You are forged.

We don’t quit. We adapt. We endure. We rise.

This Monday and Tuesday I will also be going for Velcade injections, blood tests, and a CT scan, so I understand that feeling very well.

Sometimes I remind myself not to overthink every number and just take things as they come:

“Tie your camel… and trust the journey.”

The good, the bad, the ugly—we face it all.

May 8
A MyMyelomaTeam Member

I am 79 year old male. Diagnosed in 2007 as smoldering, It, Kappa Lamda MM, was diagnosed as active in April 2024 and I began Chemo LVD. That worked for a while then tried other chemo regimens with moderate results. In December 2025 I had a CAR-T cell transplant, by March 2026 I was in remission. Still rebuilding my immune system and have had very few side effects and am feeling better every day. Praise GOD! and GOD bless all those praying for me and my wife.

May 9
A MyMyelomaTeam Member

I have no treatments for 2yrs blood tests look good.

May 9
A MyMyelomaTeam Member

https://share.google/bli8YmUx7K94WWKpg

I really took this soup to heart. It helped me so much when I really needed it.

Cancer Fighting Soup Recipe | Jenny Can Cook
Cancer Fighting Soup Recipe | Jenny Can Cook
May 9
A MyMyelomaTeam Member

I was diagnosed June, 2022. Several chemo drugs were tried until we found one Revlimid and Darselex. I have epilepsy and asked my oncologist in if he could find a chemo that would not conflict with Dilantin. That is why I do the current meds I also take cholesterol powder every night to control the loose bowels caused by the Lenalidomide (Revlimid). This past Friday, when I went for my monthly blood tests and dr visit, I discovered that my keppa free light chain numbers were down from 110 to 23.PTL

May 9

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Louisville, KY