I was diagnosed in 2019 with severe osteoporosis. My Rheumatologist recommended Zometa. After researching all the products out there, I determined that none of them actually re-built the bones. They just stopped the process, causing the bones to become brittle and causing osteonecrosis. I was diagnosed with MGUS in 2020. It wasn’t long after that, I joined the MM Team. Over these years I have read so many stories where MM patients have osteonecrosis. The suffering is intense and the waiting for treatment can be weeks with a bone sticking out! Doctors may be just parroting what the manufacturers say, that it is rare, but I don’t think it is for MM patients. The studies don’t separate MM patients from healthy people with just osteoporosis. From 2019 to now, I have refused to take Zometa and decided to go the natural route and it has worked well for me. I take calcium & Magnesium (MRM Bone Maximizer III- 1400 mg a day) with extra D3 for absorption and K2 which tells the calcium to go to the bones. K2 is very important. As extra support I take Vitamins C, A, and E complex. They all work together to strengthen the bones, that MM is constantly trying to breakdown. I hope this helps.💕
Paula🌹

So I recently had a terrible time with this and my oncologist (MM specialist) told me it had nothing to do with the zometa. So now I'm frustrated. He said if I was having a reaction to the zometa my entire jaw bone would be dying. But after a root canal (which they shouldn't have done bc the antibiotics didn't reduce my swelling so I had a "hot tooth" and basically the novacaine didn't work on me for about a third of the procedure time so that was a thing that I would like to forget), I was in agony as several bone shards migrated through my jaw over the course of two weeks. Once they were finally out, the sores healed. So I was scared and in pain for about a month all told. And now it seems like my doctor was just...wrong? Or wasn't really listening to me? Does my experience sound like it mirrors yours wrt the bone shards? Thank you in advance for any info you can share.

I had bone shards break off on several occasions. No more Zometa for me. I don’t like that I am a part of that statistic that had a bad reaction.

During routine dental work the sharp corners of an x-ray film card cut into my gum exposing the bone. It took several months to surgically attach tissue over the exposed bone. Luckily the slow process was eventually successful and all has been well for about 2 years. No other issues but my oncologist said jaw issues were not uncommon in those of us on xgeva.