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A MyMyelomaTeam Member asked a question 💭
Crestview, FL
July 8
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Answer Summary

Members shared a wide range of personal experiences with IVIG infusions after stem cell transplants, with timelines for starting treatment... Read more

Members shared a wide range of personal experiences with IVIG infusions after stem cell transplants, with timelines for starting treatment varying greatly, from a few months to many years post-transplant, often triggered by dropping IgG levels or recurring infections. Several members noted that infusions typically run 3 to 4 hours, with early sessions sometimes longer, and that side effects like lightheadedness, fatigue, or headaches were generally mild and manageable with pre-meds like Tylenol and Benadryl. A recurring theme was finding ways to pass the time during infusions by reading, crocheting, or watching shows, along with encouragement to advocate for timely treatment rather than waiting for levels to drop too low.

A MyMyelomaTeam Member

My transplant doctor puts anyone with IgG under 300 on IVIg infusions. Ive been on them monthly since 2020, and my numbers just now went up to 800!

July 11
A MyMyelomaTeam Member

Joy,
I just read an article yesterday on Cancer Therapy Advisor. Maybe you could Google it?
“EHA 2026: Dr Rahul Banerjee Discusses New Options in Multiple Myeloma (Video).” Published 7-6-26
In it they mentioned for these new trials, they don’t wait for antibody levels to drop below a threshold, but start them from the first cycle. He says Insurance companies push back, but they think it is essential to prevent infections.
Paula🌹

July 11
A MyMyelomaTeam Member

It was three years after SCT that I had IVIG infusions as I had 3 colds one after another. Haven't had a cold since and still have infusions monthly

July 11
A MyMyelomaTeam Member

I have been on it for almost 11 years. Seems my immune system never rebooted after transplant. Sometimes I get a headache after but that’s it for side effects.

July 11
A MyMyelomaTeam Member

I haven’t had a SCT, but I can share my IVIG story- which I’m repeating on here. My immunoglobulins have been stable over the past year but I couldn’t shake a chest cold I caught last summer that continued well into the fall. My dr suggested monthly IVIG infusions starting last October and it cleared the cold from my system quickly. Haven’t had a cold since then and I stopped the infusion in April. Seems to be no big thing. I would discuss getting an infusion just to boost your immunity so you can better fight an infection- especially as we get into the fall cold and flu season.

July 11

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