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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Myeloma has reaked havoc on my teeth. Does anyone else have this problem? If so can you recommend grants that are available?

A MyMyelomaTeam Member asked a question 💭
Trenton, TN
June 25
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A MyMyelomaTeam Member

Alzina,
I feel for you! My teeth are actually starting to feel better, since I have been taking Calcium & Magnesium (1200-1400 mg MRM Bone Maximizer III) with extra vitamin D3 & K2, which help with absorption and K2 tells the calcium to go to the bones and teeth. Vitamin C helps it work better. I take Vitamins A and E complex too. My teeth were dissolving from the roots. Now they are doing better. Hope this helps. My fingernails are growing fast on this protocol.
Paula🌹

June 25
A MyMyelomaTeam Member

I love my vitamins too. 😉
Not sure about grants Alzina. Your oncologist or their nurse practitioner might be able to help you with that. 🙏

Charlie

August 25
MyMyelomaTeam

Dental problems with myeloma are more common than many people realize — you are definitely not alone in this! Up to 30% of myeloma cases can affect the bones in the face or mouth, and many MyMyelomaTeam members have shared similar struggles.

Myeloma and its treatments can cause a range of oral health issues, including:

- Show Full Answer

Dental problems with myeloma are more common than many people realize — you are definitely not alone in this! Up to 30% of myeloma cases can affect the bones in the face or mouth, and many MyMyelomaTeam members have shared similar struggles.

Myeloma and its treatments can cause a range of oral health issues, including:

- Bone disease affecting the jaw
- Tumors on the gums
- Jaw bone lesions
- Osteonecrosis of the jaw (ONJ), linked to bisphosphonate or denosumab treatments
- Bleeding gums, dry mouth, infections, and mouth pain from chemotherapy As one MyMyelomaTeam member shared, "Still having side effect issues from my treatments — fatigue, headaches, and my gums and teeth hurt to the extent that it is hard to eat." So yes, this is a very real and shared experience.

For financial help, here are some options worth exploring:

- Patient Advocate Foundation — can help find financial support and assist with insurance claims
- Myeloma medication manufacturers — many offer copay assistance programs and can help with insurance coverage
- Your oncologist — as one MyMyelomaTeam member noted, "My oncologist was instrumental in obtaining a grant that covers my copay"

It's also worth making sure your dentist and oncologist are communicating with each other, as most dentists don't regularly treat people with myeloma and may not be aware of all the risks involved.

June 25

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