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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My first myeloma symptom was neuropathy. It has not improved with treatment. Is there any solution? The myeloma is in complete remission,

A MyMyelomaTeam Member asked a question 💭
Dingle, Co Kerry
June 17
 · 
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A MyMyelomaTeam Member

Brenda,
I am Smoldering and @A MyMyelomaTeam Member is Smoldering. We both have Neuropathy even though we are not being treated. Treatment just causes it to get worse. B comp,ex vitamins and Alpha Lipoic acid help accordingly to a MM Specialist I got a 2nd opinion from. I take 2 heaping teaspoons of Nutritional yeast every morning, because my mom never got neuropathy while taking it, when she was being treated for ovarian cancer.
Paula🌹

June 17
MyMyelomaTeam

It's actually not uncommon for peripheral neuropathy (PN) to persist even after reaching remission. Both myeloma itself and the treatments used can damage nerves, and unfortunately, for some people the symptoms linger long after treatment ends.

One MyMyelomaTeam member shared: "Neuropathy can take a long time to subside Show Full Answer

It's actually not uncommon for peripheral neuropathy (PN) to persist even after reaching remission. Both myeloma itself and the treatments used can damage nerves, and unfortunately, for some people the symptoms linger long after treatment ends.

One MyMyelomaTeam member shared: "Neuropathy can take a long time to subside, or it may never go away. I've met people who are four years in, and their doctors told them if it hadn't left by now, it probably won't."

That said, there are options worth exploring with your care team. Prescription medication options your doctor may consider include:

- Antidepressants – sometimes used specifically for nerve pain management
- Anticonvulsants – one MyMyelomaTeam member said increasing their dose made their pain "tolerable"
- Pain medications or analgesics – sometimes used in combination with the above

It's worth noting that responses to these medications vary widely. Some people find relief quickly, while others need to try a few different options before finding what works. Some practical day-to-day tips shared by MyMyelomaTeam members include:

- Using a foot massager for short sessions to ease discomfort
- Wearing well-fitted, supportive footwear
- Using potholders when cooking and checking water temperature carefully, since reduced sensation increases the risk of burns or cuts

Consulting a neurology specialist alongside your oncology team can also open up additional treatment avenues tailored specifically to persistent neuropathy symptoms.

June 17

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