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A MyMyelomaTeam Member asked a question 💭
San Jose, CA
June 15
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Answer Summary

Members rated their multiple myeloma doctors and specialists on a scale of 1 to 10, with scores ranging from 7 to 10 and many feeling grateful... Read more

Members rated their multiple myeloma doctors and specialists on a scale of 1 to 10, with scores ranging from 7 to 10 and many feeling grateful for compassionate, knowledgeable care. Several members highlighted the value of doctors who listen, allow patients to take part in treatment decisions, and support advanced testing like ClonoSEQ for MRD monitoring. A recurring theme was that feeling like a true partner in care, rather than just a patient, made a big difference in trust and peace of mind.

A MyMyelomaTeam Member

I have a local oncologist who is about my age of 64 and is very good. My fear is when he retires. I have heard the other specialist at my center is not very good. But I did meet another very good doctor at a different center a few years ago and I could transfer to him if necessary.
In the past 20 years I have been through 5 different GP's. They all retire, quit or move for different reasons.
Good doctors are like good auto mechanics.

June 18
A MyMyelomaTeam Member

10 fully transparent and available to answer all of my questions. They presented us with a 4" binder of detailed info on what to expect. They talk to us. Not at us.

June 18
A MyMyelomaTeam Member

Our oncologist is simply amazing! He’s smart! Always learning and teaching. He’s been treating me for about 5 years. I have MM. I’m in remission. He’s been treating my husband a little over a year for SMM and AL Amyloidosis. He has a wonderful sense of humor, he’s personable. What I truly appreciate is the communication. I can send them a text message and within 15 minutes, I have a response. We feel extremely fortunate!

June 18
A MyMyelomaTeam Member

I want to move my Doctor up to a grade of 8 now, he just took me off all medication and told me I am MRD-NEGATIVE. It has been a while for me. But I am very content, just bloodwork once a month for 3 months and if all is still well blood work every 3 months.

June 17
A MyMyelomaTeam Member

Mine has become a Definite 10 - We're partners in my MM Monitoring (Monthly Labs, Quarterly clonoSEQ MRD Testing). He spends time to Listen and Review my Research during our Quarterly Meetings, and he Adds the Labs and Genetic Tests that I've Requested, as I've continued to Research and Learn about MM.

All of this while I Remain on No MM Meds - We both carefully Monitor that what I've made work is Real and We're both open to take Action if ever needed.

June 16

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