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What’s the most important recommendation for a newly diagnosed MM patient? I’ve been w/oncologist & nephrologist 2 months.

A MyMyelomaTeam Member asked a question 💭
Myrtle Beach, SC

Kidney biopsy results just in. AL amyloidosis Light chain Kappa myeloma. My bone marrow results were sadly limited by the sample. I see a local oncologist June 9, 2026. Been traveling 2 hours for my “team.” The nephrologist told me along with the diagnosis, my kidney function is good but it’s my kidney filters that are damaged.

June 7
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A MyMyelomaTeam Member

Absolutely! Thank you @A MyMyelomaTeam Member so much for the tips. My sodium has been low. I don’t eat processed food, I’m blessed my hubby is my personal chef! My nephrologist got me off NSAIDS and Tylenol (is that one? Or Advil?) my first appointment with him, April 21. My eGRF has remained above 80 since he started testing it. My potassium is also in normal range.thankfully, my patient portal keeps all these tests on-lime with a view trends option. YAY so I can easily track. I have taken magnesium supplements for 15 years or so, those levels are good. I’ve recently started on Isopure clear protein water. Mild electrolytes. Hoping it would help my sodium.

June 7 (edited)
A MyMyelomaTeam Member

Debbielees
Glad to hear your kidney function is still good. Keep an eye on your eGFR. 60 and above is good. Mine dropped to 59I was told no big deal- so very wrong. Now it is down to 41
Watch your sodium , magnesium, phosphorus ( difficult not on many nutrients labels) stay away from processed foods and NSAIDS ie Motrin ibuprofen. So you are doing all you can to protect your kidneys

June 7
MyMyelomaTeam

First, it's genuinely encouraging that your kidney function is still good — that's a meaningful positive at this stage. With kappa light chain myeloma and filter damage, the priority is protecting what you have while getting myeloma under control as quickly as possible.

Here are the most important things to focus on right Show Full Answer

First, it's genuinely encouraging that your kidney function is still good — that's a meaningful positive at this stage. With kappa light chain myeloma and filter damage, the priority is protecting what you have while getting myeloma under control as quickly as possible.

Here are the most important things to focus on right now:

- Stay well hydrated — aim for 2 to 3 liters of water daily to help reduce the burden on your kidney filters
- Avoid NSAIDs (like ibuprofen or naproxen) for pain — these can worsen kidney function significantly
- Be cautious with any new medications — always check with your team before starting anything new, including supplements
- Start anti-myeloma treatment promptly — controlling the myeloma reduces the abnormal light chain proteins that are damaging your filters Your multidisciplinary team approach — oncology and nephrology working together — is exactly the right setup. A MyMyelomaTeam member shared that having urology, nephrology, and oncology working together gave them excellent results, with a dramatic decline in myeloma protein early on.

Given the 2-hour travel distance, it may be worth asking your team whether telehealth check-ins are possible between in-person visits, so nothing slips through the gaps while you wait for your June appointment.

June 7
A MyMyelomaTeam Member

Debbie,
Watch your eGFR and Creatinine.
FYI, A woman’s top limit for Creatinine is lower than men’s.
It’s too bad they didn’t get a better bone marrow sample. That happened to me on my first one. The second time I had a very experienced person and they got plenty.
Paula🌹

June 7

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