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Will my hair fall out again with Car T cell treatment

A MyMyelomaTeam Member asked a question 💭
Salt Lake City, UT
May 21
 · 
Reactions
A MyMyelomaTeam Member

Shelley,
Two articles just came out recently about CarT. It was about how women have more side effects than men and how the immune system is compromised for a long time after, causing infections. Secondly cancers were also a concern. They say it may give you more time. If you are not responding to treatment and are high risk, I can understand why you are considering it.
Paula🌹

May 21 (edited)
A MyMyelomaTeam Member

Hi
I was diagnosed a few months ago with primary plasma cell leukemia at 61. The plan is to do transplant after 4th cycle of immunotherapy. They suggested 2 transplants. In the meantime I am eating healthy, exercising when I can, praying and keeping stress to a minimum.

August 9
A MyMyelomaTeam Member

I have responded well to treatments but due to the nature of my cancer, (plasma cell leukemia is very rare and very aggressiveand high risk) I relapsed 9 months after my stem cell transplant. CarT is the next line of defense. I'll be talking to my Drs on June 5th about options, side effects, future relapses, etc.
I am 70 so it's a lot to think about.
Thanks

May 21
MyMyelomaTeam

Hair loss is a great question to ask about CAR T-cell therapy! The good news is that hair loss is not listed as one of the common side effects of CAR T-cell therapy for myeloma.

The side effects most commonly reported include:

- Fatigue
- Infections
- Muscle aches
- Nausea or diarrhea
- Fever or chills
- Headache
- Loss Show Full Answer

Hair loss is a great question to ask about CAR T-cell therapy! The good news is that hair loss is not listed as one of the common side effects of CAR T-cell therapy for myeloma.

The side effects most commonly reported include:

- Fatigue
- Infections
- Muscle aches
- Nausea or diarrhea
- Fever or chills
- Headache
- Loss of appetite
- Swelling or cough

The more serious side effects to be aware of are cytokine release syndrome (CRS) — which can cause fever, low blood pressure, and breathing problems — and neurotoxicity, which can affect the brain and nerves.

Because of these risks, CAR T-cell therapy is only offered at specially certified treatment centers where staff are trained to manage complications.

It's always worth raising hair loss concerns directly with the care team, as individual experiences can vary.

May 21

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