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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 16
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A MyMyelomaTeam Member

Sounds like you’re dealing with side effects of a Blood Pressure medication

June 17
A MyMyelomaTeam Member

My experience
Ask your doctor

I can relate to some of this during my Multiple Myeloma journey. Even in remission, many of us still experience ongoing effects from both the disease and long-term treatment.

Joint pain in the fingers, legs, hands, shoulders, cramps, stiffness, neuropathy, and body aches can happen from: treatment side effects inflammation nerve irritation steroid effects muscle weakness/fatigue reduced activity over time

Sometimes shoulder pain and movement problems can also come from muscle tightness or old bone involvement, so it’s important to mention it during follow-up.

Low HB requiring transfusions can also explain: fatigue. weakness's breathlessness reduced stamina body aches feeling worse

I learned that remission does not always mean the body immediately feels “normal” again. Many of us continue learning how to balance activity, rest, nutrition, hydration, and recovery.

For me personally, some days I can do more, while other days my body reminds me to slow down 😅

Now when I walk a little faster, sometimes my heart pumps very fast like I just ran 100 metres 🤭 And if I keep doing housework continuously one after another, my breathing can start to feel tight and heavy too.

Over time, I’m slowly learning to adapt, pace myself better, and accept that my body has different limits now compared to before treatment.

Some days are easier, some days are harder — but Alhamdulillah, we keep moving forward step by step 😇🤲💛

I am old or myeloma …….🫣🤭

🩸🙏🙂

May 17
MyMyelomaTeam

It sounds like remission is bringing some relief, but the joint pain and low hemoglobin (HB) are still making things tough. These are experiences shared by many MyMyelomaTeam members, so you're definitely not alone in this.

The joint and finger pain, along with shoulder discomfort, could be related to peripheral neuropathy Show Full Answer

It sounds like remission is bringing some relief, but the joint pain and low hemoglobin (HB) are still making things tough. These are experiences shared by many MyMyelomaTeam members, so you're definitely not alone in this.

The joint and finger pain, along with shoulder discomfort, could be related to peripheral neuropathy (PN) — a common complication of myeloma. PN can cause:

- Tingling, numbness, or burning sensations
- Weakness in hands and feet
- Pain that affects movement and daily activities

This can be caused by the myeloma itself or as a side effect of treatments used to manage it. Regarding the dropping hemoglobin requiring transfusions — anemia is a known part of myeloma and can persist even during remission. It's important to keep your oncology team closely informed about how frequently transfusions are needed.

Some helpful steps to discuss with your care team include:

- Physical therapy for joint pain and shoulder movement
- Gentle exercises like walking or swimming to improve circulation
- Vitamin D supplementation to support bone health
- Medication review — some myeloma treatments can worsen neuropathy, and your doctor may adjust accordingly

Always flag any worsening symptoms promptly, especially sudden intense pain or numbness, as these can occasionally signal something needing urgent attention.

May 16

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Long Island, NY