Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Rochester, NY

I will be 100+ days post transplant mid August- what do you think of an outdoor concert at that point- sitting at end seats ?

What were you doing at day 100+ going out, restaurants, vacation etc?

Thank you.

May 11
 · 
Reactions
A MyMyelomaTeam Member

Recovery after the transplant is different for each person with Multiple Myeloma. Some people bounce back faster, while others still feel fatigue, weakness, or low stamina even after 100 days.

One thing I realized after transplant is that sometimes the mind wants to return to normal life faster than the body is ready 😅

At first, even simple outings, long walking, heat, or busy environments could drain the energy much faster than before.
Enjoy life carefully, but don’t force yourself to keep up with your “old normal.”

May 14
A MyMyelomaTeam Member

Team said it was okay being after day 100- I'll still take precautions and mask, sit on the outside seats.

May 12
A MyMyelomaTeam Member

Hi Anne, So my sct was at the very end of June 2024. My 100 days was about October 10. Winter was approaching so outdoor events in the NYC area were pretty much done except for Giant or Jet games, I wasn't about to sit outdoors for a football game in cold weather, add to the fact both teams were (and still are horrible) although I am a Giants fan. Also with the Holiday Season coming up and still a bit weak, I didn't want to push it to much, especially Flu season was kicking in. NYC is very beautiful during the holidays, so I walked around the City many times.
Anyway, come November I went to my brother's for Thanksgiving, about 20 people. December went to my sister-in-law's sister's house for Christmas Eve and to a friend's for Christmas Day. Keep in mind, still was immunocompromised and didn't start getting revaccinated until January 2025. Through June I was going out to eat quite a bit, went to the movies, a few jazz clubs and visited friends. By June I had all my vaccinations except the MMR, which is given two years post-sct. I love the beach, so I spent many days in June/July/August at various beaches in Brooklyn and Long Island. Also took a few trips to visit friends in Denver, Tucson and Tampa Bay. Come Fall 2025, I was feeling a lot better and started doing stuff as if I didn't have our situation.
...and here I am.

May 11
A MyMyelomaTeam Member

Have a great time 🥰

May 13
A MyMyelomaTeam Member

I think you will need to ask your transplant team.

May 12 (edited)

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Rochester, NY

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In